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Hi everyone,
My name is Beth, and I’ve been diagnosed with systemic scleroderma, a rare and aggressive autoimmune disease that’s attacking my body from the inside out. It’s causing my skin and connective tissue to harden, and it’s also affecting my internal organs, especially my lungs, esophagus, and joints.
Every day, I’m losing more mobility. My hands are so stiff and painful that I can barely hold things, and my joints ache constantly. My esophagus has tightened, making it difficult to eat or even breathe comfortably. It’s terrifying watching my body change so quickly and knowing that without the right treatment, it could continue to progress.
My doctors have referred me to the UCLA Scleroderma Clinic in California, one of the top centers in the country for this disease. I’ll need to fly out five times to receive immunosuppressive infusions that can help stop my immune system from attacking itself.
Each trip costs around $1,000 for flights, transportation, and one night in a hotel after each treatment (I must stay in-state for 24 hours after every infusion). My insurance will cover travel two times per year, but that leaves me paying out of pocket for the other three.
I’m asking for help to make those trips possible.
Any amount you can give will directly go toward travel and lodging costs so I can continue receiving treatment that could literally save my life.
Even if you can’t donate, please consider sharing this with others. Every bit of support helps me get closer to healing and stability.
Thank you so much for your kindness and compassion.
❤️

