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Help Battling Endometriosis and Cancer

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Hello everyone,

Thank you for taking the time to be here and to read/engage with my story. In 2021, I became very ill and sought out medical care/treatments. At the time in my state of residency, Texas, I was able to be pre-emptively diagnosed with a condition known as Endometriosis. I was considered "genetically pre-disposed" because my mother suffered from the same disease when she was younger. In 2022, the state of Texas passed legislation that stopped my healthcare journey in it's tracks. In order for me to be diagnosed "officially" with Endometriosis and receive further treatment, I would have to undergo hormone therapy measures to help in the diagnostics. My insurance at the time required this treatment before they would approve a laparoscopy (robotics surgery) to officially diagnose and remove the disease. Given the state legislation blocked this "gender affirming healthcare", I was turned away from dozens of OBGYN/Endocrinology practices in Texas due to legality from 2022-2024. In June of 2024, I moved back to my home state of California and began transferring my healthcare to a state where I could receive the necessary medical care I required. Over the next 8 months, I attended over 30 doctor's appointments, spent countless nights in the ER due to severe symptoms, as well as sought help in community resources and case management for my medical needs. I finally was granted a surgery date for a Hysterectomy at age 34 which was supposed to take place in April of this year. I was called two days before my surgery and notified that my insurance would not approve the surgery. My OBGYN/Endocrinology team in San Diego did everything they could to advocate and got me back on the surgery books for May 24, 2025. I received a call last week informing me that due to the extreme intricacies on my case (my reproductive system is fused to my gastric system, and both systems are fused to my lower back) insurance has once again denied my surgery. They have also found cancerous cells, though they are unsure of from which system it originates in (Cervical, Uterine or Colon) I have recently relocated to the state of Colorado to seek the medical care I need in order to survive this disease and it has been moving forward as best as it can. I am a Medicaid recipient and have been since 2022 when I had to leave my work sector due to my ailing health/symptoms. I am doing this on my own, and while I have been able to achieve amazing things with my insurance in Colorado, community programs/organizations and crisis relief while seeking medical sanctuary, I am no longer able to handle this solo.

As I am attending appointments here in Colorado (I was able to transfer my medical case/chart/treatment plan from San Diego to Colorado, and have scheduled appointments with the correct departments necessary for furthering my care here) I am humbly asking if you do have anything to give in the next month before my surgery consults begin, or at anytime along this journey, to please know these are the areas of my life that funds will be allocated to:
1. Temporary independent living so that I may continue my healthcare journey with in-home assistance. I do not have a place to live at the moment in Colorado to seek this healthcare. Due to the intricacies of my medical needs, I do not qualify for any type of communal shelter. I am currently homeless and at the grace of friends and the community in Denver to stay sheltered. I have an in-take appointment with community resources on May 22, 2025 that will assist me in finding safe and accessible temporary housing while I am awaiting surgery. They will also be assisting in pushing forward my application for SSI/SSDI (as I stopped teaching and went on FMLA for this condition in 2022) so that I may live independently and receive proper in home health-care/assistance with the resources I have through disability.
2. Phone bill/utilities. Without an income it has been incredibly hard for me to have a steady line of connection between myself and my medical team. I must have access to a phone line to continue my treatment plans.
3. Transport/travel. This includes ride shares to get me to my doctors appointments or to go to the labs/imaging I will need to complete.

Here is more information on the health condition Endometriosis if you wanted to do some further research/have questions Endometriosis Information

I genuinely appreciate your time and love in reading this. I am truly very fortunate to be alive and want to continue to make the strides necessary to move forward with my healthcare.
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    Organizer

    Alyssa Edwards
    Organizer
    Aurora, CO

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