Hi there, my name is Barbie Cull, I am 22, and I have Cystic Fibrosis, a genetic mutation that primarily effects the lungs. It is the most common fatal genetic disease affecting Canadian children and young adults. I was diagnosed at 6 months old. I lived a healthy childhood. It was not until high school were my health took a turn for the worse and I was hospitalized for the first time and diagnosed with Cystic Fibrosis related diabetes. As it is a progressive illness, the last couple years haven't been the best in terms of my health. Multiple hospital admissions and what seems like endless roads of iv and oral antibiotics have taken their toll on my health, with constant infections deteriorating my lung function. As of right now, my lung function stands at 43%. I am a recent college graduate and am finally living on my own. I am in need of High Frequency Chest Wall Oscillation machine. (CF Vest). This therapy treatment vibrates the chest at a high frequency to help with airway clearance and lung capacity. My care team and I have explored all the options, and I have been told this is my only option for recovery from the three chest infections I am currently fighting, but it unfortunately is not covered by any insurance of Canadian drug plans.... I have never been comfortable asking those around me for help, but I humbly ask for any support that can be given.
- Worden Insurance Staff Fund
- McDougall Insurance & Financial
- Gordon Cull
- Douglas Lyte