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Hello, and thank you for visiting our page.
This fundraiser is to help the Lang family as they work with a tough medical diagnosis and treatment plan. As many of you know, Eden and Ezekiel have a Creatine Deficiency Disorder, and with that diagnosis comes other complications.
In June, Baby Zeke was having difficulty breathing because of aspiration and swallowing problems. To give his throat and lungs a break, he was given an nasogastric tube at a hospital in St. Paul. This was a large expense to the family for their stay in the hospital and transportation. His medical team decided that his primary care will be in St. Paul, as to best help him.
In July, Baby Zeke started having seizures, and has since been diagnosed with a seizure disorder as part of his creatine deficiency. While medication have helped, he still is having clusters daily.
In September, Baby Zeke had his gastrostomy tube placed, also incurring a hospital stay. Through checkups, infections and follow up appointments, there has been significant travel requirements for Raven, and disruption to the boys' daily life.
We're asking for your help to provide travel expenses, meals, care for the other 3 school aged boys, and general support for the family. If you're not able to donate, but would rather prepare meals or do something else for the family, please reach out! Thank you for your kindness, compassion, and generosity during these challenging times.
Organizer and beneficiary
Raven Lang
Beneficiary

