Kishan N is a bright and resilient 17-month-old toddler from Bengaluru, Karnataka, India. I am a close friend of his father, Nithin, and have witnessed the love and dedication his family has shown through every challenge. Kishan was able to walk with support since he was a year old, but recently, his condition took a heartbreaking turn—he lost the ability to walk and now struggles even to crawl. Concerned, his parents sought medical help and received the devastating diagnosis: Spinal Muscular Atrophy (SMA) Type 2, a rare and severe genetic neuromuscular disorder causing progressive muscle weakness and wasting (atrophy) due to the loss of motor neurons in the spinal cord.

This diagnosis has changed everything for Kishan and his family. Without urgent treatment with the FDA-approved gene therapy Zolgensma before he turns two, Kishan’s condition will become critical. He may never walk again and could eventually lose the ability to breathe on his own. The gene therapy cost is extremely high, and his family needs a significant amount to begin treatment. They reached out to Novartis, the manufacturer of Zolgensma, for financial assistance, but unfortunately, the financial assistance program ended in 2024 and they did not receive support.

The money raised through this fundraiser will go directly toward starting Kishan’s gene therapy treatment, giving him the best possible chance at a healthier, fuller life. As I am based in the US, I will withdraw the funds and ensure they are securely transferred to Kishan’s family in India to cover his urgent medical needs. I will also update the money transactions to Kishan's family here for the sake of transparency. Your kindness today builds Kishan’s tomorrow; please join us in giving him the chance to turn a fatal diagnosis into hope for a brighter future.