*Help Ayham Fight Sturge-Weber Syndrome*
Hello, my name is Amani Al-Halabi. I once ran a small business as a graphic designer, creating joyful decorations for weddings, birthdays, and celebrations. Life was simple and fulfilling with my husband and our two young children—our 7-year-old and little Ayham, who is just 3.
But our joy turned into fear when Ayham was born and diagnosed with Sturge-Weber Syndrome (SWS)—a rare neurological disorder affecting 1 in 50,000 births. He has a large port-wine birthmark covering the right side of his body, extending to his brain, eye, and limbs. This syndrome affects the nervous system and causes severe health issues, including seizures, developmental delays, and vision problems.
At just one month old, Ayham underwent surgery to remove glaucoma from his eye due to dangerously high pressure that threatened his vision. But this was just the beginning of a long, painful treatment journey.
As a mother, my only wish is to give my son the care and stability he needs to live, learn, and thrive. But we can no longer afford the growing medical costs. That’s why I’m turning to you.
Your support—no matter how small—can help Ayham receive the treatment and therapy he urgently needs.
Please, stand with us in this fight. Help me give Ayham a chance at a better future
Organizer
