These past few years have been rough medical years for Audrina as she's become increasingly more complex.

We are at the point where a wheelchair van has now become a necessity for safe transport instead of a convenience.

Audrina was admitted to the ICU on 04/23/25 for respiratory failure with two active viral infections. As of today 5/22/25, she is still expected to be here a few more weeks before she can be discharged. Audrina had her tracheostomy surgery on 5/14/25.

Our current SUV barely had room for her previous equipment so with the new additional equipment we won't have room for everything & her wheelchair. Physical therapy is recommending a change to an electric chair so we are awaiting that outpatient consultation appointment. With a heavy electric wheelchair we would absolutely need a converted wheelchair with ramps.

Until now we had chosen to try to take care of everything ourselves that was not covered by insurance. But this is too big of an expense to take on so we have finally decided to humbly ask for help.

Brandon & Tiara

We understand that not everyone can donate but please free to help by sharing her link

Here is a medical background on Audrina for those who don't know her personally:

Spina bifida (myelomenigocele) is her main medical condition from which everything else stems.

♥Acidosis [E87.2]

♥Anemia in chronic kidney disease [D63.1]

♥Arnold-Chiari malformation type II with spina bifida & hydrocephalus (2 total decompressions with 1 fossa graft) [Q07.03]

♥Asthma [J45.909]

♥Brain & spine shunts, 3 total: VP + lumbar RIGHT side (abdominal draining), subarachnoid thoracic shunt [Z98.2]

♥Bronchiectasis [J47.1]

♥Chronic kidney disease, stage 1—avoid NSAIDS per nephrologist starting in 2019 (not an allergy) [N18.9]

♥Communication disorder [F80.9] Limited word verbalization, but cognitively aware & can respond appropriately to choose between options presented to her. Present 2 options by holding up your hands & she will look towards the option she wants or say “no” if neither are correct

♥Dysphagia [R13.10]

♥Epilepsy, complex partial w/generalization (HX: 1 focal & 1 tonic clonic seizure)

♥GERD [K21.9]

♥Global developmental delay [F88]

♥Hydrocephalus [G91.9]

♥Hypoxemia, mostly nocturnal

♥Lumboperitoneal shunt [Z98.2]

♥Nephrolithiasis, recurrent struvite calculus [N20.0]

♥Neurogenic bladder dysfunction [N31.9] (vesicostomy surgery 01/2020, openly draining w/o rosebud stoma)

♥Neurogenic bowels [K59.2]

♥Neuromuscular dislocation of BILATERAL hip joints [S73.0, Q65.1]

♥Non-ambulatory [R26.2]

♥Nystagmus [H55.09]

♥Recurrent UTI [N39.0]

♥Scoliosis, neuromuscular [M41.40]

♥Seizure, convulsive [R56.9]

♥Sleep apnea, central & obstructive [G47.31, G47.33]

♥Sleep related hypoventilation [G47.36]

♥Spina bifida lumbar with hydrocephalus [Q05.2]

♥Strabismus, intermittent [50.3]

♥Thoracic subarachnoid shunt [Z98.2]

♥Valgus deformity, left ankle [M21.072]

♥Ventriculoperitoneal VP shunt, tubing ends in R abdomen [Z98.2]

Our SUV had its engine completely replaced last year, just 2 months past the end of its warranty. We were still paying off the auto loan and now we are paying the $10k engine on top of that.