Help Ashley and Areaya Overcome Chiari Malformation

Ashley’s family seeks funds for a Barcelona Chiari procedure, travel, and recovery

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$10,590 raised of $50K

Help Ashley and Areaya Overcome Chiari Malformation

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My name is Ashley, I am a mother of 3 kiddos and a wife to a god sent amazing man who serves his purpose in life helping others as a firefighter. My daughter and I were born with a medical condition that I found out about a few years ago because my quality of life started declining due to the symptoms. My recent MRI also shows a cyst in my spine which can become very dangerous. My daughter’s symptoms started with headaches and sleep disturbances as well as eating difficulties. She has decompression in the skull. It’s called Chiari Malformation. Our condition essentially has to do with our brain protruding through the foreman magnum at the base of my skull because of a deformity. It causes many day to day symptoms like severe migraines that effect our eye sight and daily functions, vertigo symptoms, arm and hand numbness, constant nausea to the stomach, constant back/should and neck pain. There are so many more symptoms, but this condition is severely affecting our lives and my ability to be the best mom I can be and to enjoy life with my family.
My husband and I just found out about a procedure they do in Spain at the Chiari Malformation Institute in Barcelona that is 90% safer than traditional decompression surgery they perform here in the US with no deaths/complications from it. We’ve been in contact with the institute and talked to so many patients they have preformed this on. These patient’s testimonies with the progression of this disease stopping as well as symptoms going away and quality of life becoming so much brighter and happier has given hope to my family. It is a very expensive surgery, we are starting this go fund me praying we can raise money to help us get this procedure done as soon as possible.

Organizer

Ashley Johnson
Organizer
Marysville, WA
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