Help Ashlee achieve her dreams

Hi, my name is Ute and with the help of my daughter Tara, we are fundraising for Ashlee, so she can achieve her dreams.

Here is Ashlee’s Cancer Journey.

Ashlee was diagnosed on 27th July 2020 with an Optic Nerve Glioma. It

was being monitored for the next 6mths until Ashlee lost her eye

sight in her right eye in Feb 2021. Her eye tumor had tripled in size

in just 3mths. Ashlee was then admitted to Queensland Children’s

Hospital on the 9th March to have a port of Cath placed directly into her

blood stream. She started her first cycle of chemo the following day.

That was once a week for the first 6 weeks then monthly for 11mths.

( 12 cycles) unfortunately Ashlee got an anaphylactic allergic reaction

to one of her chemo drugs and treatment was ceased at cycle 11. (All

this going on as well as completing year 12 and graduating).

While receiving treatment for her optic nerve glioma, the doctors were

keeping a close eye on another area of concern in her left frontal lobe.

Her doctors decided to do a biopsy on the left frontal lobe on the 27th

January 2022, which came back as a paediatric diffuse high grade

Glioma / Astrocytoma ( grade 3 ). Within 3 weeks Ash underwent 33

days ( 7 weeks ) of intense radiation from March to April to try and

get rid of this nasty. Radiation worked and at that stage both tumors

were stable. Come November 2022, doctors noticed a change in her

Cerebellum so once again back on oral chemotherapy. That continued

for approximately 8mths. The mass measured 16mm in axial diameter in

February and then in May had shown it had grown to now 22mm in

axial diameter. She continued with oral chemo until recently. Ash had another

MRI review in August which showed that Ashlee’s tumor’s, all 3 of

them had grown, the worst being the Cerebellum. It has now spread from

the right Cerebellum into the midline and Vermis, which the pressure is

causing loss of balance / falls and memory loss. Ashlee has now

started a new chemo regime which is every 6 weeks orally and

immunotherapy every 2 weeks. Unfortunately due to having so many

days of radiation last year they are unable to give her anymore. So

now this means that we can only hope and pray that this chemo

regime she is on WORKS. If not there is nothing else the Doctors can

do and it will just be a matter of time until this terrible disease takes

over her body.

She is only 19 yrs old and has the most amazing positive attitude. Her dream is to go to the Maldives, Bora Bora or Fiji just to have that opportunity to sleep in an ocean bungalow and dive into crystal clear water as soon as you walk outside.