**UPDATE 13/05/2026**
We wanted to give everyone another update on Archie’s treatment and explain why we have now increased our fundraising target to £50,000.
Our first initial estimate was for $8,106.00. However, after our consultation with the specialist and the tests and procedures he initially ordered, this increased to $28,088.90. This was because the upper endoscopy, colonoscopy and esophagogastroduodenoscopy alone come to $21,600.00.
Today (13th May), following results from bloods, scans and X-rays, the specialist has told us that on Friday 15th May Archie needs surgery to insert an interventional PICC line and begin TPN. This procedure comes to $20,949.62.
Archie has consented to this procedure, and we have been told that it could give him an extra 10–15 years, as opposed to the devastating 18 months to 2 year timescale we were given last year.
We know how incredibly generous people have already been, and we are beyond grateful for every donation, share and message of support. But we are now so desperate to enable this surgery to go ahead and give Archie the chance at the future he deserves.
Thank you all for standing beside us through this.
**UPDATE 11/05/26**
As most of you know, last month we took Archie to the London Mayo Clinic to see a specialist gastrointestinal consultant and at the time we were told there was nothing more they could do.
Shortly afterwards, we received an email from the American Mayo Clinic regarding a proposed admission in May. After reviewing all of Archie’s medical records, they confirmed that although CIPO cannot be cured, they believed they could help give Archie a longer and more comfortable life.
The original estimated treatment costs were just over $8,000, alongside flights for the three of us and two weeks of accommodation in Minnesota.
Thanks to the incredible generosity of everyone who donated and shared Archie’s story, especially the two people who wish to remain anonymous and donated £5,000 each directly. we were able to get here to the Mayo Clinic, and we will never be able to thank you all enough for helping make that possible.
Today was Archie’s first appointment at Mayo Clinic and it was a long and emotional day. After further consultations and investigations, including spinal X-rays, the specialists decided many more tests are needed than originally expected.
The estimated medical costs have now risen to over $25,000 (£19,472), and depending on what the scans, blood tests and investigations show, Archie may still require surgical intervention and a longer stay.
If anyone is able to donate towards Archie’s ongoing treatment costs while we are here in Minnesota, no matter how small the amount, it would mean the world to us. Every single donation and share truly helps and brings us one step closer to getting Archie the care he needs
**ARCHIE UPDATE 13/03/26**
Firstly I would like to thank everyone who donated and made it possible for Archie to see WWE MONDAY NIGHT RAW in August 2025 at Birmingham NEC. He had a fantastic time and it was amazing to see him so full of life.
Archie has suffered with gastrointestinal problems since birth. He had an ACE STOMA fitted when he was 6 and it is still in situ along with a gastrointestinal feeding peg which was fitted in August 2024.
Archie has suffered with Colon dysmotility, colon mortality, dysphagia, GERD, spina bifida, scoliosis thoracic right sided, since birth and was diagnosed in 2023 with severe left sided colon failure with only 30cm of large bowel function, lymphonodular hyperplasia, 'failure to thrive' and recently in 2025 with CIPO.
These conditions put an immense strain on his Internal organs and he is now suffering with chronic kidney disease. He had his feeding peg fitted in August 2024 with the promise that it would help with his nutrition and weight gain, however following the diagnosis of CIPO this means that his gut does not take any nutrients from his food meaning the peg is not working and he needs arterial TPN feeds.
Unfortunately because Archie has had so many failed surgeries ge has refused this treatment.
Without this treatment and if he continues to lose weight at the rate he has been, it gives him a life expectancy of 18months to 2years. We know there is no cure for CIPO but we truly believe if we could get him to the Mayo Clinic in America with a consultant surgeon who specialises in Neurogastro conditions, we could get a second opinion which could ultimately extend and bring back his quality of life.
His conditions greatly impact his life. He wasn't able to complete his last year of school so no exams or prom because he spent the last 3months of his academic year in GOSH. He attended college but again due to hospital admissions he wasn't able to complete his course.
He refuses to leave the house when he is on his feeding pump, his washouts are painful and cause vomiting and he has no energy due to failed muscle enzymes etc. His current weight is 39kg and his BMI is 15.
We know people are struggling in a world that is going mad but please please please even if you cannot donate please share my sons story all every social media platform going in the hope that someone somewhere might know someone else who could help us.
Hearing you're 19yr old son saying he doesn't care if he dies, is soul destroying.
He recently had a surgery to unblock and replace his ACE but we are running out of time to which we can continue to use this method.
His last manometrys were done in 2023 so these need to be repeated along with MRI scans and bloods.
This is not going to be cheap so I implore you if you have a fundraising idea please email me on [email redacted] or Jessica White on [email redacted]
Thankyou
I'm writing this on behalf of my dear friend and her incredible son, Archie. Many of you already know bits of their story, but I want to share it fully — because right now, they need our help more than ever.
Archie has been ill since birth, and his journey has been heartbreaking, brave, and relentless. Despite countless hospital visits, tests, and endless appointments, they struggled for years to get a proper diagnosis — all while fighting for Archie to be taken seriously.
Things took a devastating turn in early 2023. Archie started losing weight at an alarming rate — even though he was eating more than 3,500 calories a day. By September, he was admitted to GOSH (Great Ormond Street Hospital) weighing just 36kg. But instead of getting help, a false allegation by his father led doctors to stop treatment entirely. They claimed he had an eating disorder and that his mother was the cause. Archie was questioned repeatedly. His mum was investigated. And when the truth finally came out and everything was disproved — it was too late. Archie had aged out of their care.
Since then, he’s had a feeding peg fitted and been on 16-hour-a-day feeds plus eating normally. Despite this, he’s barely been able to maintain 42kg — and has now dropped to 40kg again. In February 2025, after finally seeing the right specialists, Archie was diagnosed with CIPO (Chronic Intestinal Pseudo Obstruction), along with colon dysmotility, colon dysphagia, GERD, spina bifida, and Failure to Thrive (FTT).
CIPO is a devastating, rare condition that mimics a complete bowel obstruction — but without any physical blockage. It’s untreatable, and his only chance to stabilize his condition is through TPN (Total Parenteral Nutrition), which involves feeding directly into the bloodstream. With this, doctors estimate Archie might have 10 to 15 years. Without it, and if the weight loss continues, they believe he may have just 18 to 24 months.
Right now, Archie is refusing further treatment. He’s exhausted, he’s in pain, and emotionally he's at a breaking point. His family is doing everything they can to support him and change his mind — but they’re also trying to give him moments of hope and joy.
That’s why we’ve started this GoFundMe.
Archie’s biggest dream is to go to WWE Monday Night RAW Live — and we want to take him in August 2025, while he’s still well enough to travel. At the same time, we want to get him to the Mayo Clinic in the U.S., which has some of the only neurogastroenterology specialists in the world who may be able to offer a second opinion, treatment alternatives, or at the very least, clarity on what lies ahead.
The specific Mayo Clinics that handle cases like Archie’s are in Minnesota, Florida, and Arizona, so the trip will involve complex logistics — not just flights and accommodation, but also medical support along the way.
We are fundraising to cover:
Flights and accommodation for Archie and his mum
Tickets and travel to WWE Monday Night RAW
Private consultation and evaluation at the Mayo Clinic
Any urgent medical expenses while abroad
Travel insurance and accessibility support
This isn’t just about a trip. This is about giving Archie something to look forward to, and hopefully, a chance at life-saving care that he’s never truly had access to.
If you can donate, no matter how small, it would mean the world. And if you can’t, please consider sharing this with your friends and family.
Thank you for taking the time to read this and support a young man who has shown more strength than most of us will ever need to. Let’s help Archie feel hope again.