
Help Annie and others suffering with Epidermolysis bullosa
This is my sister Annie after 2 years of fighting she was officially diagnosed with recessive dystrophic Epidermolysis bullosa (EB) in 2023 Debra is a charity that has helped Annie in her battle against EB tremendously by providing aid and advice
so to give back I will be doing the Aberavon green stars rfc pier swim on the 19th July at 13:25 pm any donation and support would be greatly appreciated, every donation truly helps to make a difference Do you want to join me in making a difference? I'm raising money in aid of DEBRA and every donation will help. Thank you in advance for your contribution to this cause that means so much to me.
More information about DEBRA: DEBRA is a national charity and support organisation for people living with the incredibly painful genetic skin blistering condition, epidermolysis bullosa (EB). It causes the skin to blister and tear at the slightest touch, skin is as fragile as a butterfly’s wings. DEBRA provides care and support to improve quality of life for people living with EB, and funds pioneering research to find effective treatments and, ultimately cure(s) for EB.
For more information visit https:\\www.debra.org.uk
Organizer

Ben Pugh
Organizer
DEBRA
Beneficiary