Help Amelia with her therapies

Hello, my name is Maria and I am the mum of a 29-month old little princess called Amelia.

Amelia was born on the 28th of September of 2019 by emergency C-section almost 2 months earlier.

When she was born she needed help with oxygen straight away due to her very low muscle tone; she wasn't able to breathe on her own.

When she was 3 weeks old she was diagnosed with Prader-Willi Syndrome and due to her low muscle tone and breathing difficulties she spent almost the 4 firsts months of her life in hospital.

Prader-Willi Syndrome (PWS) is a rare, complex genetic disorder that affects both males and females from birth and throughout their lives. It causes low muscle tone with consequent motor developmental delay, a mild to moderate learning difficulty, incomplete sexual development, and emotional and social immaturity, which can lead to challenging behaviors. During childhood, an overwhelming and insatiable chronic appetite usually develops which, without rigorous food management and exercise regimes, leads to food-seeking, stealing, and life-threatening obesity. PWS occurs randomly in about 1:22,000 births and it is estimated that there are about 2,000 living with PWS in the UK.

As soon as we got home from the hospital on Christmas 2019 covid came and with it self isolation and medical appointments restrictions.

Since then Amelia has still been on the NHS waiting list for Occupational therapy and speech therapy. The NHS physiotherapist saw her via videoconference no more than 5 times in all these 2 years. She never met Amelia in person.

Because of this lack of support as soon as the Covid-19 restriction where lifted we started to take her to private professionals in Birmingham, Oxford, and Spain.

All these therapies have been paid for  us, but as she is getting older she has been having the need to have more professionals involved to help her with her motor skills and also her speech.

Three months ago Amelia has been diagnosed with positional scoliosis, which will disappear if Amelia's strength improves on her belly muscles and starts walking.

The increase in therapies' prices made us open this account on GoFundMe to raise money for her therapies. The money will be destinated to therapies such as Physiotherapy, Speech Therapy, Occupational Therapy, Aqua Therapy, and also some equipment she might need to support her development.