
Help Amber Rose Fight Rare Brain Disorder!
Hi, my name is Amber Rose and I suffer from Idiopathic Intracranial Hypertension & Eagle’s Syndrome. It is very debilitating and painful illness. I suffer from extreme pain, cluster & migraine headaches that can last 5 hours to several days. It effects my vision, my balance and my speech.
On March 18, I underwent Venous Sinus Stenting to repair bilateral narrowing of the venous arteries inside my brain. As a result of this I have been placed on very high doses of blood thinners and pain medications, most of which are not covered by my insurance. It's going to cost me an additional $1000+ per month for the next 6 months while I'm on the aggressive blood thinners. I will also have to miss A LOT of work while recovering. The road ahead isn’t easy, but I’m not out of options yet.