Hello, my name is Amanda and this is my first time doing something like this. I just don't know what else to do. I am a single mom and it just seems like one thing after another.

My daughter has a very rare skin disease called KID Syndrome. They are wanting to do more testing and see more specialists to see if they can come up with answers. This disease has really impacted her self-esteem, especially as she's getting older. As her mom, it hurts my heart.

These tests and specialists are going to cost, even with insurance. I just want her to be happy with her appearance and if testing can give us better answers, I am all for it. Anything will help. Thank you all, and God bless.