Help Amanda Overcome Her Brain Tumor Battle

Hi all! It’s Amanda Morris Bain. Last May, I started having seizure like episodes. The medical community thought my depression, anxiety, and PTSD were causing them. So, they kept Baker Acting me and starting me on antipsychotic medications during my stays. With every epileptic seizure/seizure the administration of an antipsychotic, with no mental health diagnosis to support it, caused my brain to become damaged. They medical staff was told my family and I have a history of antipsychotics doing terrible things to our bodies and brains. Looking back, we think my first episode had to be in 2015. With these episodes I have no triggers. I snap, go for days blacked out, wake up 5-6 days later and have no idea where I am or why. Then, I spend weeks being confused (worse and longer if they administered antipsychotics.) until the episode subsides and the antipsychotic is out of my system. I was having a very serious seizure every 6 weeks or so with neurological and seizure symptoms in between the major ones. The Nations’s #1 hospital found a 6mm menangioma back in 2015 in my brain and neglected to tell me. I had continuing and additional complaints to the same hospital neurology team and nothing serious was ever done. They didn’t even tell me I had one in 2015! The neurologists should have been following me carefully and taking a specialized type of MRI every year and additional MRI’s and other tests with any signs of serious symptoms. I have a had a very rough couple years. I had to quit my job due to unrelated health issues (or so I thought), and applied for SSDI in 2021. My daughter had two major hospital stays and I had two major surgeries within 3 months of each other. I have received no money from SSDI to date. In 2022, my father got very sick and ended up in a nursing home, because I was too sick to take care of him. I got parasites from a medication the MD prescribed me for psoriatic arthritis to help stop my pain. Then the parasites caused a disease called Morgellons. It’s gnarly and awful. Check out OK State University. They are the ones doing much of the research. In 2023, I was hacked and lost about 78,000 dollars. I had to change phones, carriers, my telephone number and purchase a new computer. I’ve lived off my 401 K and savings since that time. Since May of 2023-2025, I’ve been incorrectly admitted to Inpatient Psych 5 times and arrested twice. None were my fault. After the second IP psych admit, we went to my primary care Dr. in October of 2023. The hospitalizations in May and Sept-October, were bad and I had not been myself that whole summer. He said even with bowel and bladder incontinence, during those episodes, it might not be neurological? Even my mental health providers knew that 2015, and these recent episodes were not likely mental health related. No action was taken by the provider other than to refer me to neurology. I never got a call and I was calling them constantly, but kept being told no appointment was available. Jan 2024, I had two nurses call the police when during another seizure, where I recall nothing of the event. I apparently kicked them while my hands were tied down to a bed. I was arrested. Don’t remember any of that and charged with Felony Battery. I got home after bail, and my wallet had been stolen with very personal items, Christmas money and gifts cards. I had two more IP psychiatric stays in March, another in May and was arrested in June. I took my Dad with me on the June seizure episode and have not been allowed to see him since. APS got involved and would not listen to the fact I had no control over the seizures, could no longer drive and would be happy to just visit my dad at the nursing home. I’m his DPOA and my hands are tied until I get well. Not even on Christmas Day and they knew I had a brain tumor. Then I had another small seizure at the beginning of May and remember more pieces and parts of that. Then I had a very serious and long one at the end of July-through the first week of August. My family had no idea where I was and I was out of state. I was so confused I was going in and out of consciousness and confusion. So, from October 2023 when I first reported to my MD through now, I have not been seen by a neurologist at Mayo. At the end of August 2024, when they finally ordered an MRI (not specialized either) that showed other abnormalities and a very scary type of menangioma. So, if Mayo had ordered an MRI right away, I would have avoided the additional Ip Psych admits, the arrests, the lawyers, the plane tickets and the fees. When they finally did, the menangioma had grown large enough with my autoimmune issues and problems with inflammation to press on the tumor and cause the seizures. They did some other tests too and they were abnormal. I have damage in other parts of my body, likely related to the menangioma too. I have a very difficult brain tumor for surgeons to remove. The one causing issues is in a very difficult location in the parietal lobe. So, I decided I’m an RN and didn’t go to nursing school for nothing and started treating myself. My MD finally agreed to the steroids to stop the inflammation that was pushing on the tumor causing the seizures. Most of the medical staff and MD’s have been worthless throughout this ordeal. However, the steroids are just a band-aid. He gave me a referral to a specialty clinic at Northwestern in Chicago. Mayo hospital and it’s providers did not provide timely or accurate care and my quality of life is almost unbearable. Stuck in the house all day unless someone can drive me. Paying off credit card, medical, hospital, lawyers bills. Can’t see my family, Dad (and I am the only family member he still recognizes regularly with his dementia), friends. The worst part is with the surgery being so difficult, I’m in for the fight of my life and I need some help on finances now. I will have unpaid medical expenses, food, airplane tickets, and all my regular bills that have to be paid at home. I know it’s a rough time of year, but tax season is around the corner and I’d be grateful for any help you could provide! I haven’t been anti-social. It’s not my nature, but I have sure been sick. I miss you all. Please help me get through this surgery and back to myself so we can all hang out again. Thank you from the bottom of my heart.