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Help Amanda & Family Stay by Lucas's Side

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My names Marie and alot of you may already know this but Amanda is my best friend and right now her family is facing a difficult time. Unexpectedly Sunday night her 7 week old was airlifted to childrens hospital for an unknown medical condition. At this time baby Lucas has already received blood, platelets, and a spinal tap. They are being told they could be in childrens for a few weeks. Amanda fought hard to have Lucas , she pushed thru pre eclampsia and delivered a beautiful healthy boy. Right now they could use your help with gas, food, and keeping their bills paid as both parents will be by Lucas's side at childrens during all of this ♥️

Update: Lucas had a blood exchange last evening..today he is getting a bone marrow biopsy ...abdominal ultrasound as he has fluid in the belly...and he will get an mri of the head tonight...he is currently intubated for all of this testing.

We are thankful for all of the love and support for our baby boy unfortunately Lucas has a very long road ahead of him.

We do now have a diagnosis HLH syndrome (Hemophagocytic lymphohistiocytosis). We are still waiting on the genetic testing to determine if it is primary or secondary. However they do believe it is primary. Lucas started chemotherapy last night, he did well with it. Lucas will have 8 weeks of chemotherapy as an inpatient at Children’s Hospital

Please keep Lucas and our family in your thoughts and prayers. ❤️

7/31 Update...Lucas has 7 more weeks of chemo then a bone marrow transplant and will need to be in the hospital 4-6 weeks after that and as of now 3 weekly visits to the clinic..but TODAY was big..he got his tube out! And mom and dad got to hold him again ♥️

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    Organiser

    Marie Ealy
    Organiser
    Clearfield Township, PA

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