Help Alison get to NAPA London, Sept 2024

We turn to our family, friends and communities to help us get Alison to NAPA London in September 2024.

An amazing opportunity has seen Alison secure a position to attend a 3 week intensive program in NAPA London where Alison will partake in multiple daily sessions of Physiotherapy, Occupational Therapy and Speech & Language therapies along with access to new equipment and methods.

Such an incredible opportunity comes with a high price tag, which is why we come to you, to ask for support in helping us advance our beautiful Alison.

Let me tell you a little about Alison’s background;

After a normal pregnancy, Alison was born on the 14th December 2019, the joy and relief that our baby girl had arrived safely was short lived. Alison stopped breathing at 3 hours old, was transferred to NICU and put on a ventilator. An EEG showed Alison was seizing, which took days to control. The walls truly came crashing down when at 2 days old, Alison had an MRI showing an extensive global injury to Alison’s brain. We were told to prepare for the worst.

However, little did the medical team know that Alison was a fighter. Alison came home at 10 days old on the 24th December just in time for Santa’s arrival.

Alison’s diagnosis is Neonatal Encephalopathy, global development delay and Epilepsy. Alison’s seizures have seen her air lifted to hospital, become well acquainted with the A&E teams in Cork as well as transferred to Temple Street’s Paediatric ICU department in August 2021.

Alison’s diagnosis unfortunately means Alison is not yet walking, a wheel chair user, minimal speech, delayed learning along with the unkind reality that Ali will require lifelong care.

Early intervention is vital for Alison’s progress yet HSE staffing shortages does mean that Alison’s therapy requirements are not fully met. Funding these therapies privately, completing week long intensive programs here in Ireland and acquiring the equipment Alison requires is costly.

Nevertheless, Alison’s life isn’t all medical and to know Alison is a joy. Alison is full of love, fun and mischief.

Alison is in her second year of Playschool attending Butterflies Community Playschool in Ballyduff Upper and Sesame Specialist Day Service in Dungarvan.

Alison adores music and will make everyone she meets sing a song with her, being outside, messing with water and dance parties are the ultimate!

To have Alison’s love is something unique and her hugs are therapeutic. Alison smiles with her whole face and while we as a family have had tough days and weeks, one of those smiles from Ali really does make everything ok again.

All funds raised will go towards getting Alison to NAPA in September 2024, private therapy and potential house alterations to make our home fully accessible for Alison.

Fundraising events will be taking place locally so keep an eye for further details.

Thank you for coming along on this journey, it means the world to us.