Alice Beall Rockhill is my 7-year-old daughter, and she has shown more strength and courage than most people do in a lifetime. Born with Klippel-Trenaunay Syndrome (KTS), a rare vascular anomaly, Alice has spent her life in and out of hospitals. She’s already undergone 18 procedures, a couple of surgeries, and countless hospital visits. Some days she walks with a limp, and other days she needs a wheelchair, but through it all, she remains hopeful and resilient.

KTS is a progressive overgrowth syndrome that causes abnormal development of blood vessels, soft tissue, and bones. In Alice’s case, it means that parts of her body affected by the condition don’t stop growing. In her case; left leg from buttocks to toes. This can lead to chronic pain, mobility challenges, and serious complications — including internal bleeding, blood clots, and in severe cases, the risk of amputation or even life-threatening events. There is no cure, only management through specialized care and ongoing procedures.

Her affected leg is already 2.5 inches longer than her other leg, which has started to cause spinal curve problems because she cannot sit or stand straight. By March, Alice will undergo another Achilles tendon lengthening surgery. Once her treatments are nearing an end, she will face a major surgery where doctors will remove sections of bone from her femur and shin to shorten her leg and match the other. She has several large vascular systems running thru her kneecap joint that hemorrhage when she bends her knee, so the pain of stretching and bending is severe and discourages mobility. When the overgrowth and vascular system are finally under control, this will help her move and grow with less pain and more freedom. This is a long journey, but we are determined to give Alice the best chance at a healthy, active life.

This year, we are following an aggressive strategy with Dr. Yakes, a specialist in Englewood, Colorado (a suburb of Denver), who is able to safely perform two procedures in one week during each trip. With trips scheduled every 6-8 weeks starting January 5th, we are fast-tracking Alice’s healing and aiming for about 18 procedures this year. This approach gives us hope for a speedier recovery and a brighter future for Alice.

We are exhausting all financial help options—applying for grants, scholarships, using FSA funds, and work bonuses. We have also committed to a more comprehensive insurance policy, chosen specifically so that Dr. Yakes is fully covered after the deductible is met. However, the upfront costs for travel, lodging, food, and the insurance deductible are still significant.

These funds will go directly toward Alice’s healing journey—covering travel, lodging, food, and medical expenses. With this new treatment, it’s possible that Alice will be able to walk and even run within the next few years. She dreams of dancing with her sisters and keeping up with her older siblings, and this care could make that possible. If you know Alice, you know she prays every day for healing—not just for herself, but for others, too. Your support will help give her the healthy, strong, and pain-free future she deserves. Thank you for being part of Alice’s journey and for believing in her future.