Alex was born as a twin pregnancy in Feb 2018. He was diagnosed with a rare and very serious heart condition named Hypoplastic Left Heart Syndrome when he was just three days old.
In non-medical terms, he is living with half a working heart and has various other medical conditions on top.
Alex has had two major open heart surgeries and is currently awaiting a third
HLHS affects oxygen levels as blood isn’t being pumped around the body sufficiently meaning he lives with low blood oxygen levels, causing him to be blue and breathless when moving around indoors and even just playing with his toys. Alex also suffers with feeding issues meaning he’s connected to a pump for 23 hours a day and mobility issues which combined with his heart makes trips outdoors difficult.
As a family we like to venture out every weekend and multiple times during school holidays but it’s becoming increasingly difficult to do this without a suitable pushchair for Alex to not only keep him safe and easily accessible for emergencies and tube feeds, but also keeping him warm and dry too.
My 16 year old has been carrying Alex in a back carrier but that comes with its own problems and relying on him to come out with us each time when he wants to be with friends isn’t entirely fair either.
I’m asking for donations to purchase a new all terrain specialist pushchair because although Alex has a wheelchair, it isn’t suitable for outdoor walks, specifically through woodland, beaches and riversides which he absolutely loves.
Thank you for reading this far ❤️