Our son Alek is fighting for his life—and his future. Alek was diagnosed with NORSE, a rare and devastating neurological condition that changed everything overnight. If you’ve been following his journey, you’ve seen it—he went from bedridden to standing again. Now he’s pushing every day to walk, move, and regain his independence.
There is a breakthrough option: HAL (Hybrid Assistive Limb) therapy—technology that can help reconnect his brain and body. But insurance doesn’t cover it at all, and the costs add up fast. Funds will be used to cover the cost of HAL therapy sessions twice a week, which are not covered by insurance. This therapy is essential for Alek’s recovery and his chance to regain independence.
We’re asking for help. Every donation, every share, every bit of support moves Alek one step closer to getting his life back. If you’ve ever rooted for someone to win—this is that moment. Please stand with Alek.
There is a breakthrough option: HAL (Hybrid Assistive Limb) therapy—technology that can help reconnect his brain and body. But insurance doesn’t cover it at all, and the costs add up fast. Funds will be used to cover the cost of HAL therapy sessions twice a week, which are not covered by insurance. This therapy is essential for Alek’s recovery and his chance to regain independence.
We’re asking for help. Every donation, every share, every bit of support moves Alek one step closer to getting his life back. If you’ve ever rooted for someone to win—this is that moment. Please stand with Alek.






