We need to raise funds so that our son Albert can have a life changing operation in USA, performed only on tens of patients so far.
Albert was born on the 11th of August 2016 at Chelsea and Westminster Hospital with suspected PostUrethreal Valves. Immediately after he was born, he was taken into NICU, and ever since then, our life was all about antibiotics, severe recurrent UTIS and about PRUNE BELLY SYNDROME, a debilitating condition , meaning he has no abdominal muscles and severe urinary problems.
He overcame more health problems in one year than most people in a lifetime and has been more in the hospital than at home. We overcame our fears , our anger and frustrations and now we are left with acceptance and infinite love.
At the moment, Albert is more or less medically stable, has only one kidney working with less than 70% function, after severe recurrent utis with sepsis, major surgeries happening this year and our only dream for Albert is for him to have a reconstruction surgery of his abdominal muscles in the USA.
This surgery will not only help him lead a normal life, but will also help with his kidney and urinary tract health, because having no abdominal muscles will always create problems, sometimes even with heart , lungs and spine.
His internal organs might move position, change dimension, etc. all because of his deficiency of muscles. It's not muscles that he could create in a gym, it's an absolute genetic lack of major group of muscles and the surgery planned in USA would basically be a transplant of a muscle from his leg to his abdomen, an absolute innovative idea, followed by abdominal reconstruction and years of phisiotherapy.
The operation is called a dynamic abdominoplasty with a muscle transposition and is only performed at this stage in USA.
Doctors in UK don't do this type of surgery, meaning that he will never have the opportunity to lead a normal life.Classical abdominoplasty doesn't work for kids such as Albert and usually its cosmetic effect dissappear in two years time with no therapeutic effect. We don't want a disabled child, we didn't even apply for Disability allowance and currently we are struggling to make ends meet, our only income being my husbands carpenter salary.
Albert is a very happy child, less happy when he falls ill, which happens very often, and brings joy, laughter to everyone who knows him.
Please help us to make our dream come true for Albert, so that he will always smile, so that he will always inspire joy to people and not pitty and never feel out of sorts because of his appearance . His kidney disease is enough sufference.
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