Help Adam Lott fight rare brain cancer
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As some of you may have heard, this last month my fiancé, Adam, received some scary news after going to the ER with stroke like symptoms that ended up being caused by a brain tumor on the right side of the cerebellum. Two days later he underwent surgery where they successfully removed what they believe to be all of the mass. Pathology took a while but it was finally determined to be a malignant tumor called medulloblastoma, a predominantly pediatric form of cancer. In fact, there’s less than 200 adults a year, on average, that develop it. Even for adults, it’s rare for a 41 year old to get it as most adults that get it are in their late 20s. As a father of three amazing boys, all this news was devastating for Adam to hear. Medulloblastoma is a very aggressive form of brain cancer that we are very lucky to have caught early as it has the potential to spread down the spinal cord. He has since had an MRI and spinal tap that both came back clear though – yay! The after effects of the spinal tap did however send him back to the ER with horrible head pain due to leaking spinal fluid.
His care has been transferred to Seattle Cancer Care Alliance where he met his team of a neuro-oncologist and a radiation oncologist. We are waiting for them to receive his pathology to determine the full plan of attack but as it stands they are estimating he will need 6 weeks of proton radiation therapy, 5 days a week, up at Northwest Hospital in Northgate, where they will radiate his head where the tumor was, as well as his spine, in order to kill off any possible remaining cancer cells. I will say that we are very thankful to have a proton therapy center in our state as the next closest one is 1200 miles away! They let us know that there is a chance he will also need (months long) chemotherapy at the end of radiation but we won’t know until SCCA’s pathology is complete.
As the hospital bills start to flow in ($250k and counting pre-insurance), we are thankful for insurance, but also realizing very quickly how fast additional expenses add up. He will have to travel to Northgate 5 days a week, a total of 60 miles each day in Seattle traffic. That’s not including the additional check-in appointments with the oncologist at UW Medical Center. We were also made aware that proton therapy is considered “experimental treatment” which means his insurance denied it the first time and he will have 3 chances to appeal. And at the end of it all, Adam was told that due to the fast growing nature of this cancer, he’ll have to get MRI’s to check that it hasn’t returned at least twice a year for multiple years to come.
Now we begin this journey of multiple doctor visits, treatments, side effects, bills, and more. Adam’s constant humor and positive outlook overall will carry him through this difficult time, I have no doubt. He may temporarily lose some of his signature hair but he will never lose that beautiful smile. Your support means the world to us. Thank you.

His care has been transferred to Seattle Cancer Care Alliance where he met his team of a neuro-oncologist and a radiation oncologist. We are waiting for them to receive his pathology to determine the full plan of attack but as it stands they are estimating he will need 6 weeks of proton radiation therapy, 5 days a week, up at Northwest Hospital in Northgate, where they will radiate his head where the tumor was, as well as his spine, in order to kill off any possible remaining cancer cells. I will say that we are very thankful to have a proton therapy center in our state as the next closest one is 1200 miles away! They let us know that there is a chance he will also need (months long) chemotherapy at the end of radiation but we won’t know until SCCA’s pathology is complete.
As the hospital bills start to flow in ($250k and counting pre-insurance), we are thankful for insurance, but also realizing very quickly how fast additional expenses add up. He will have to travel to Northgate 5 days a week, a total of 60 miles each day in Seattle traffic. That’s not including the additional check-in appointments with the oncologist at UW Medical Center. We were also made aware that proton therapy is considered “experimental treatment” which means his insurance denied it the first time and he will have 3 chances to appeal. And at the end of it all, Adam was told that due to the fast growing nature of this cancer, he’ll have to get MRI’s to check that it hasn’t returned at least twice a year for multiple years to come.
Now we begin this journey of multiple doctor visits, treatments, side effects, bills, and more. Adam’s constant humor and positive outlook overall will carry him through this difficult time, I have no doubt. He may temporarily lose some of his signature hair but he will never lose that beautiful smile. Your support means the world to us. Thank you.
Organizer
Naomi Hubert
Organizer
Kent, WA