Dear friends and colleagues, 

For almost two years I have had the privilege to serve caregivers and patients affected by Hunter Syndrome (or MPSII).  This rare genetic condition affects approximately 2,000 people worldwide, 500 of whom live in the United States. These patients are missing an enzyme used to break down cellular waste. When the waste builds up, it leads to progressive damage in certain cells and tissues. The build up eventually causes permanent, progressive damage affecting appearance, mental development, organ function and physical abilities (What is Hunter Syndrome?)

Last week, during MPS Awareness Day, I listened to the inspiring stories of two speakers affected by Hunter syndrome. One of the speakers, Dr. Jennifer Carter, the mom of 10 year old Aidan, has dedicated her time and efforts to raise money and awareness for Hunter Syndrome research. She and her husband are committed to finding a cure not only for their son, but for all the other families who are fighting a cure. 

Four years ago, Dr. Jen Carter started a 5K Trail Run/Walk called “Action for Aidan”. This Walk raises money for genetic research at Nationwide Children’s Hospital to find a cure for her son Aidan and other children with Hunter Syndrome (Project Alive: Gene therapy for Hunter Syndrome)

Learn more about Aidan’s parents unconditional love and dedication at www.actionforaidan.org.

If you are able to participate in Aidan’s 5K Run/Walk on June 2nd please do so by registering on Action for Aidan’s page. If you can’t attend, please consider supporting Dr. Carter’s cause.  

My goal is to raise $2000 on behalf of the family. Please make sure that you write in the comment section “Takeda for Aidan” (All funds raised on behalf of Action for Aidan will benefit the mission of Project Alive, a 501 (c)(3) not-for-profit, which is to support a cure for Hunter Syndrome/MPSII. Donations are tax deductible (Tax ID: 46-4617970).

Thank you so much in advance for supporting this cause!