Help Mandy Fight CRPS: My Journey to Germany

Fundraising Goal: $95,000 CAD

I'm not asking for a different life. I'm fighting for the chance to live the one I have.

My name is Mandy Jolene. I'm a mother of four, an entrepreneur, a creator, and someone who genuinely loves life. I love making people laugh, building community, and finding joy in the smallest moments.

I'm also living with Complex Regional Pain Syndrome (CRPS), a debilitating chronic pain condition that has changed my life in ways I never imagined. In addition to CRPS, I live with a movement disorder called dystonia, which causes involuntary muscle contractions and has contributed to severe muscle atrophy. Together, these conditions have significantly affected my mobility, physical independence, and ability to do things most people take for granted.

But while these conditions have changed the way I live, they have never changed who I am or taken away my determination to keep fighting for a better quality of life.

Imagine waking up every day with burning, stabbing, electric pain. Your body shaking, muscles spasming, and even the simplest touch becoming unbearable. Imagine trying to raise your children, work, and maintain a normal life while your nervous system constantly tells you something is terribly wrong.

That's my reality. But it isn't my identity.

I don't always share the difficult days. Most people see me laughing on TikTok, building my businesses, raising my children, and creating a community where everyone belongs. What they don't always see is the pain, exhaustion, physical limitations, and determination it takes to keep showing up.

I refuse to let CRPS take away everything that makes my life beautiful.

My Hope for Germany

After navigating treatments and the challenges of living with CRPS, I'm working toward a specialized, multidisciplinary treatment program in Germany.

My hope is to achieve significant pain relief, regain physical function, and, if possible, reach full remission.

The treatment journey is expected to last approximately 90 days, with my teenage son accompanying me.

My proposed care may include:

- Specialized infusions and nerve blocks

- Red and green light therapy and vibration therapy

- Occupational, aquatic, mirror box, and desensitization therapies

- Botox injections for affected muscles

- Possible surgery to address lesions, if medically indicated

- Consultations with multiple specialists and access to specialized medical equipment

- Additional treatments recommended by the medical team based on my condition and progress

CRPS is complex, and there are no guarantees of remission or a cure. But I believe pursuing appropriate specialized care is worth every effort.

I don't expect medicine to give me a perfect life. I'm hoping it will help me experience more of the life I already love.

Why I'm Raising $95,000

This journey involves far more than medical treatment.

The funds will help cover specialized medical care, flights between Canada and Germany, 90 days of accommodations and living expenses for my son and me, and the ongoing responsibilities of maintaining our home and family life in Canada.

As a mother of four, I have to make sure my children and household are cared for while I'm away.

I've worked hard to support my family, build my businesses, and manage my health. I'll continue doing everything I can, but the financial reality of this opportunity is more than I can manage alone.

I can do the work. I can make the plans. I can face the uncertainty. But I can't pretend the financial barrier doesn't exist.

Why I'm Asking for Help

Asking for help isn't easy for me. I'm usually the person trying to find solutions, encourage others, and figure things out.

But I've learned that strength doesn't mean doing everything alone.

If you're able to donate, please know how deeply grateful I am. If you can't, sharing my story, spreading awareness about CRPS, or simply offering encouragement means more than you know.

There is absolutely no pressure or obligation.

To my Rebels, my friends, my family, and anyone taking the time to read this: thank you for seeing the person behind the diagnosis.

There are still places I want to go, memories I want to make, adventures I want to have, and ordinary moments I want to experience with less pain.

I'm not finished living. And I'm not giving up on the possibility of living better.

I'm not asking anyone to save me. I'm asking for a little help getting to the next chapter.

With love and gratitude,

Mandy Jolene ❤️

Different roads. Same room. And nobody has to walk theirs alone.