Help a little guy get by

Nicolas is our heart and soul.  When he was young he was diagnosed with a very rare genetic condition called INAD.  We fight and continue to fight for him to our full potential and have done everything we can to keep him as happy and comfortable as we can.  We have done pretty well for the most part, but now we are at the point where his medical bills have gotten to where we have to make tough decisions on what we can and what we cannot do with his care.  A month ago Nicolas had to have a tracheostomy  put in and it requires constant care and supervision we have two full time home healthcare nurses to assist us with his day to day living.  He is on a ventilator most of the day.  The money we are hoping to raise will help us by providing full time care until we qualify for assistance, paying off prior bills which have added up over the past few years and by helping us cover services that commercial insurance or medicaid won't cover.   We are currently working toward getting him on medicaid but that is a slow process and does not help with the bills we have accumulated to date.   Some folks have asked what they can do to help..if you want to help this is the best we can hope for as his care takes 24 hours love and the bills pile up.  Please share this with others! We appreciate each and every one of you for your support now and to all you have done in the past. We are truly lucky to have a great resource of friends and family with huge hearts! Please share our message far and wide for Nicolas and so that others might learn and become familiar with neuro-degenerative disorders. Thank you!