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Help 8 yr old Madelin get bone marrow transplant

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Hi, we are Addison and Michele from Los Angeles. We are here to help raise money for a dear family friend of ours, Madelin. Madelin is 8 years old and has Hypoplastic Myelodysplastic Syndrome (hMDS), a rare form of cancer that requires a bone marrow transplant.

Madelin lives in Guatemala with her family and does not have access to the care she needs to fight her battle. We are raising money for Madelin to travel to Mexico where she can receive a bone marrow transplant from a private specialty hospital. The costs are extravagant, estimated at $15,000 USD for the surgery, and $1,500 USD to test each of her family members for compatibility. (They are estimating they will need to test 3 family members.) We do not expect to raise the full cost of the surgery- we are trying to do whatever we can to help little Madelin ❤️

Please help us raise money to save Madelin's life.

Below is a letter written by Madelin and her Mother, which we have translated it into English best we can.

Hello, my name is Madelin Susely Pinula Morales. I am currently 8 years old. On October 1, 2020, I was diagnosed with a rare form of cancer in my blood called, Hypoplastic myelodysplastic syndrome (hMDS). This disease has touched my bone marrow and does not allow me to produce the cells my little body needs. Since my diagnosis doctors have given me platelet and blood transfusions, otherwise I start bleeding. Right now I have to go to the hospital every 10 days for transfusions. Like all girls, I love to play and study, but my mom doesn't allow me to do many activities because of my situation. When I grow up I want to be a doctor to be able to help other children who are going through the same thing as me. I hope that by then there will be more medicine for all kinds of these rare diseases that come to us suddenly.
Sometimes platelet transfusions give me strange reactions and my little body begins to change, it turns red it hurts a lot. I try not to cry, so as not to scare my Mom, but sometimes I can not stand it. I ask God to be a normal girl, and I have hope in him and I ask him for a miracle in my life– to have a lot of health and be free of this disease.
According to the doctors, my definitive treatment is a bone marrow transplant. For my family, it has been very difficult because in my country they do not offer the type of transplant I need. I must go abroad for the bone marrow transplant, but we have limited resources and we have not been able to get the money that is needed.
Today I want to knock on the door of your heart. Be part of that miracle that I ask so much of our Lord, and help us through prayers, or if it is within your possibilities to support me with a donation to be able to travel abroad where they can do the transplant. Whatever is within your abilities to help is appreciated. ❤
I want to thank you for taking the time to read my medical story, God bless you always .

Madelin's Original Letter:
Hola mi nombre es Madelin Susely Pinula Morales actualmente tengo 8 años ya casi a cumplir 9 añitos si Dios me lo permite, quiero contarles mi historia clínica, hace dos años y 4 meses para ser exactos el 1 de octubre de 2020 me diagnosticaron una rara enfermedad en mi sangrita, síndrome mielodisplasico hipoplasico, desde esa fecha me hacen tranfuciones de plaquetas y sangre de no ser haci yo empiezo a sangrar ya que esa enfermedad ha tocado mi medula osea y no deja producir las células células que necesita mi cuerpecito, voy al hospital a cada 10 días aveces hoy antes pues como toda niña me gusta jugar mucho y estudiar y cuando sea grande quiero ser doctora para poder ayudar a muchos niños que pasan por lo mismo que yo, bueno espero que para entonces ya haya más medicina para todo tipo de esas enfermedades raras que nos llegan derrepente, bueno como les decía me encanta jugar y estudiar mucho, mi mami no me permite que haga muchas actividades por mi situación segun los médicos mi tratamiento definitivo es un transplante de medula osea para mi familia ha sido muy difícil pues somos de escasos recursos, y no han logrado conseguir ese dinero que se necesita, pues creo que es muy caro y en mi país no hacen ese tipo de transplates debe ser en el extranjero por lo cual debemos movilizarnos pero no ha habido como, aveces las tranfuciones de plaquetas me dan reacciones raras y mi cuerpecito empieza a cambiar, se pone rojito rojito y duele mucho yo trato de no llorara para no asustar a mi mami pero aveces no aguanto. yo le pido a Dios ser una niña normal, y tengo la esperanza puesta en el y le pido ese milagro en mi vida, para tener mucha salud y ser libre de esa bendita enfermedad, hoy quiero tocar la puerta de tu corazón si tu quiere formar parte de ese milagro que tanto le pido a nuestro Señor, puedes colaborar con nosotros por medio de oraciones o si esta también en tus posibilidades poder apoyarme con algún donativo lo que nazca de tu bello ❤ para lograr viajar al extranjero y puedan hacerme el transplante que necesito. Quiero agradecer por tomarse el tiempo de leer mi historia clínica que Dios me los bendiga siempre .
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    Organizer

    Addison James Marchese
    Organizer
    Los Angeles, CA

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