Hi, my name is Addison, and I’m fundraising for my handsome son, Waylon.

Waylon was born with a rare genetic disorder KCNT1 that has impacted his growth and development in many ways. Despite the challenges he faces, Waylon is incredibly strong, resilient, and full of light. Every day, he teaches us what true courage looks like.

Recently, we learned that a specially designed helmet can make a significant difference in Waylon’s development. This helmet will help shape his head properly and support his growth in ways that could improve his comfort, brain development, and quality of life.

Unfortunately, the cost of this helmet is $3,000, and it’s not covered by my insurance. As a parent, I am doing everything I can to give Waylon the best possible care, but I need help to afford this critical piece of equipment.

Every dollar brings us one step closer to giving Waylon the support he deserves. If you’re able to donate or share this page, we will be incredibly grateful.

Thank you for being part of Waylon’s journey.

With love and gratitude,

Addison