Heavens Hope

*UPDATE* Hello everyone we have returned from Philadelphia, we are feeling so encouraged and excited about heavens apts, we met with genetics and recieved promising information, opthamologhy, glaucoma specialist, plastic surgery, and nuerology all came back with promising reports. heaven does NOT need the orbital decompression, however she does need angle surgery in both eyes to make a drain for the fluid in her eyes, as of now her optic nerve does not appear to be as damaged as we originally thought. heaven is scheduled to have surgery on july 11th we will have to stay in PA for a week for observation then we will have to come back in august for a week as they will do a exam under anesthesia and if a second surgery is done they will do it then. we are calling out to our community friends and family to help us raise the funds to get heaven the care she needs. we appreciate each and everyone of you who have prayed reached out, donated called and shared our story God is able and will make a way. thank you all in advance for your continued support. Due to unforseen issues we are increasing our goal we have a long road ahead of us that will require alot of back and forth from Knoxville to Nashville and lots of hotel stays ect please continue to share and donate if possible but most importantly pray Heavens eyes are to big for her eye sockets Dr Joos is consulting with a pediatric specialist to treat and or reconstruct her eye sockets. We are heart broken and afraid but God is able thank you all in advance Tiny but mighty we are raising funds to help with the care of our daughter heaven she has a rare chromosome deletion of 15.26q that affects her growth and possibly more she was born march 23 2017 at 38 weeks she was 3lbs 10 oz she is now 2 months old and weighs 5lbs 6oz Heaven has some obstacles to overcome we are heading to Vanderbilt medical center in Nashville tn for treatment for her eyes they believe she has congenital glaucoma. She is also under the care of a cardiologist for some cardio issues. Heaven is scheduled to have eye surgery June the 1st at 11am in Nashville tn 

Donations ()

  • Kenneth Bell 
    • $50 
    • 20 mos
  • Julie Jeter 
    • $30 
    • 21 mos
  • Anonymous 
    • $25 
    • 24 mos
  • Anonymous 
    • $150 
    • 25 mos
  • Abby Freehill 
    • $20 
    • 25 mos
See all

Organizer

Courtney Beverly 
Organizer
Knoxville, TN
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