Heartful of Enzo- HLHS

Enzo my warrior was born on June 2nd, 2015 at Cleveland Clinic Special Delivery Unit at 1:44 pm weighing in at a whopping  7 lbs 13 oz. Looking shockingly healthy for a baby with a rare congenital heart defect called Hypoplastic Left Heart Syndrome.

We found out he had this CHD while he was in utero at his 19 week appointment. He had a semi rough first night- he was laboring quite a bit & he was then intubated the next day. Enzo had his first open heart surgery (Norwood) at just 3 days old. He did extremely well & came home just 13 days later (a record for the CC) . He came home on very few meds & no feeding tube. He was surpassing everyone's expectations but he was determined!

He did very well at home & grew extremely well. He had his first Heart Cath on October 21st & then his second open heart surgery (Glenn) on October 30th. Once again Enzo was on a mission to break records & did so well he went home 3 days after surgery! Unfortunately a week later he was readmitted for a wound infection (MSSA) & had to have his chest opened back up to get cleaned out & get a wound vac placed as well as a PICC line. He was on IV antibiotics for 4 weeks- his longest hospital stay yet. & still didn't let anything stop him from continuing to do amazing! Already at only 3 years old he doesn't let his CHD define him! He's stronger because of it!

Yesterday Enzo had a Heart Cath done and did outstanding, he was the bravest little man! The doctors say everything is ready to go for his next surgery! On Wednesday September 19th Enzo will have his (hopefully) last open open heart surgery (The Fontan). We ask you keep Enzo, my sister and her husband in your prayers. 

I am trying to get as many donations to help with all the hospital bills to try to lighten the stress of them both being off work to be at the hospital with Enzo. Any money that is left over will be donated to the Cleveland Clinic Children's foundation. 

We really appreciate you taking the time to read Enzo's story and donating to our little warrior. 
 

Here are a few pictures of my godson <3
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Donations

  • Anonymous 
    • $25 
    • 21 mos
  • Nicki Amato-Bulman 
    • $25 
    • 21 mos
  • Natalie Reed  
    • $50 
    • 21 mos
  • Michael & Alberta Federico 
    • $50 
    • 21 mos
  • Jim & Tina Zucallo  
    • $250 
    • 21 mos
See all

Organizer and beneficiary

Nicole Ann 
Organizer
Aurora, OH
Erica Oriani 
Beneficiary
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