During the doctor visits, they were unable to get a clear reading on her oxygen levels during the tests they performed but because her skin color looked fine they repeatedly sent us home. On Friday September 15th , Kinsley she went from 3am to 2 pm without taking her bottle, despite crying for it. I called the doctor and insisted on bringing her in. While there a nurse, one we haven’t seen before was very determined to get her readings that were still not clear. She thoroughly evaluated her and noticed her breathing.
At that very second, Kinsley went unresponsive, 911 was called and she was immediately rushed to Prince William hospital by ambulance. During the evaluation in the emergency room, the team quickly identified that she was going into heart failure and they sent an urgent call for her to be medevacked to Children’s Inova.
It was at Children’s Inova that we would come to learn that the left side of her heart ❤️ was not working, the right side had been doing the work for both but was now in distress. After a few days of testing, the team at Inova shared that she had caught an enterovirus called myocarditis that attacks the heart and the damage may be irreversible as there is no cure for in the United States to combat it. Because of this virus’s attack on her heart, she is very sick and in very critical condition.
Kinsley is currently sedated as an ECMO machine does the work of her heart and lungs, since she is not showing significant signs of improvement, she will be hospitalized as she awaits a heart transplant. The wait time for a heart transplant is undetermined and once she does receive the transplant, recovery could take up to a year, or longer before being able to have a regular life again.
First, we are asking that you pray for her. We know God to be a healer and we need him at her bedside speaking life and healing over our baby girl!
Second, we’re asking for financial assistance as the medical bills will soon start coming in and we are not sure when we will be able to return to work.
We also have a 3-year-old who misses “baby” that we are juggling spending time with as we care for Kinsley, She has daycare costs that we are covering while we try to figure all of this out.
With Kinsley now being in D.C., it has been a little more difficult getting back and forth.
All Kinsley asks for, is that you can help as much as your warm heart can. Any donations would be accepted and appreciated as we endure this challenging time.
We just want Kinsley to have the best life possible and to enjoy it as best as she can! She is currently at Children’s National Hospital in Dc!
Thank you for your love and support! Love, Terrance & Jessica
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