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HEALING HOPE FOR TYLER

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Many of our family and friends have been following his journey, but for those who are not aware, this is my grandson Tyler's journey...

When Tyler was born in September of 2021, he appeared to be a normal, healthy baby. There was some concern at his one-year well check that he didn't seem to be as socially engaged as he should be, nor verbally proficient as he should, but the doctor shrugged it off with hopes that he would "catch up".

A few months later, in the summer of 2023, Tyler suffered his first seizure. He actually had three that first day. His parents, Cait and Nate, went full steam ahead trying to get Tyler the care he needed and trying to determine why this had happened. Tyler suffered eight more seizures before the year was out.

They got Tyler every type of therapy that their insurance or the state would pay for (food therapy, early intervention preschool, occupational therapy, and speech therapy), and started seeing a neurologist, who prescribed medication to hopefully stop the seizures.

The first medication they gave him had such alarming side effects that Cait and Nate fought for another solution.

They advocated and fought for Tyler, asking for tests, evaluations, and procedures to try and not just treat the seizures, but figure out what was causing them.

During this time, Tyler was diagnosed with autism and had several more seizures, with one requiring an ambulance ride to the ER.

He suffered with insomnia and strange sleeping cycles (which means the whole family suffered), food aversion, stimming, and the hardest part... Tyler has yet to develop any speech.

A new drug was introduced by the neurologist (who after two years has been unable to come up with any idea as to what is causing the seizures). This drug worked somewhat, but Tyler still suffered sporadic seizures until Feb 4, 2025, when Tyler had a seizure in his grandma's car while coming home from preschool. He had another one an hour later, then a third. His fourth seizure that day was in the ER where he was put to sleep in order to stop them, and then transported to Primary Children's Hospital via ambulance.

Tyler continues to have seizures and the cause is still a mystery. He is developing normally in some areas, but at almost four years old, he is still non-verbal.

Cait and Nate's medical bills have now topped $10,000 and that is their cost AFTER insurance. They are still working with their original neurologist, but have recently discovered a functional neurologist who has had success with autistic children suffering from seizures.

These new therapies will not be covered by insurance, so we are now putting out a plea to our circle of friends and family and anyone else that Tyler's story reaches, to help us continue to fight for answers for Tyler.

Cait has gone back to work, working two jobs from home while managing Tyler's needs and his little sister Hazel's. Nate switched jobs and often works overtime to keep his family afloat. As I write this, today, they are getting themselves set up to donate plasma. They will literally do whatever it takes to get this boy the treatment that he needs.

Please consider donating to help us help Tyler, and please keep him in your prayers and share this message if you would be so kind.
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    Organizer and beneficiary

    Sherralynn Arnold
    Organizer
    Ogden, UT
    Caitlin Montgomery
    Beneficiary

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