Alexa's December came with some big, scary news. She was diagnosed with a rare auto-immune disease which affects only 3 in 1,000,000 children. Her diagnosis of Dermatomyositis came after she was referred for an odd rash and swelling of her fingers, etc. This sent Alexa and her parents (Josh and Heather) to see a pediatric specialist in Spokane. After seeing the specialist, Alexa was immediately admitted to the Children's Hospital and is receiving i.v. treatments as we speak. This disease is an inflammatory disease which attacks Alexa's muscles and skin. It is a progressive disease and leaves many unanwered questions on the horizon.
There is no cure for Dermatomyostits, only treatments... which Alexa will need every 3 weeks. Many tests are still being run on Alexa today to see the extent the disease has progressed, and from there it will be determined whether treatments will need to occur at Spokane Children's Hospital, Seattle Children's Hospital, or whether it can POSSIBLY happen at home in Missoula at some point.
Alexa's parents need your help!! In order to get her to her treatments, to comfort her and keep her calm, there will be loss of time at work and many travel expenses. Please join me in helping take what stress we can off of this amazing family by alleviating some of the financial burdens associated with this. Please help Josh and Heather keep their focus on what matters.... Alexa.
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