Support Madi, our RRM2B Mitochondrial Warrior!

LET'S BRING OUR GIRL HOME!!!!!

Hey! My name is Megan and I am helping to raise money to help Madi and Julie with anything that is needed at the moment. Currently, Madi is in a hospital in Vegas battling severe organ rejection and she wants to fly back to St. Louis to her doctors at Mercy, but there are issues with getting insurance to approve the transfer. As you can imagine, an air ambulance will be quite expensive. We are hoping to raise approx $60,000 to fly Madi back, and the clock is ticking! Here is the breakdown:

At this point, Madi just wants to be at her original hospital with her original doctors. Please help if you are able and please share the link, you never know who might be able to help. As always, please keep Madi in your prayers!

To give a brief history of Madi, she has been battling this horrible disease since she was about 14 years old. There are only 18 known cases of RRM2B in the history of the world, which means that doctors are learning as they go. After years of countless hospital stays, infections, and miraculous recoveries (not exaggerating), Madi proposed the idea of a multivisceral transplant to her doctors. On July 12th, 2021, Madi was officially listed on the transplant list and on Nov 24th, 2021 she received a small intestine, upper intestine, and colon.

December 2022 was supposed to be a shining beacon of joy for Madi. The Make-A-Wish foundation approved Madi’s request for a trip to Hawaii! This trip has been canceled so many times because each time she has gotten sick. On December 12th, Madi along with the 11 members of her immediate blended family should have been on their way to Hawaii. In a devastating turn of events, our brave warrior is once again fighting for her life. A year post-transplant she is suddenly in severe rejection. She was admitted to the hospital in severe pain. Now the doctors are scrambling to come up with ideas. Should they remove the organs, or should they connect all the organs? Should they send her somewhere that would specialize in these surgeries and if so, where would that be and how will they get her there?

So, this is where we are at, lots of praying for someone really smart to come up with a plan to save our sweet, beautiful, awe-inspiring, girl. We are praying this will happen quickly because our girl’s got plans.

You can read more details of her inspiring story here: https://docs.google.com/document/d/1jGzjcBH4CeS-mB-wgtaSY0Jh_etqt4todm2xKzBC_QQ/edit