£6,032 raised
·110 donations
Harpers Heart to Disneyland
Donation protected
Born with a rare and complex heart condition (Heterotaxy syndrome) at the Minor age of 2 years old Harper has already had two serious life saving operations and is due to undergo a 3rd before Christmas! This will mean she has had 2 life saving operations in 2016 alone. Harper and her family are such a humble, loving and giving family who ask for nothing in return and who definitely make the most of every day never ever moaning about the cards they've been dealt.
My name is Charlotte I'm a good friend of Harpers mum and I have put this together with a few of her friends and her Aunt Jade. We as her friends feel helpless when it comes to doing something to help this family through the hard times so wanted to set up this gofundme page to try and put a smile on their faces again and make some beautiful memories for them!
We would love to send this lovely family on a family holiday to Disneyland Paris as I couldn't tell you how amazing it would be for them all to have this time together! Any donations would be so great fully received! Harper we love you keep fighting beautiful xx
Please read below a segment that Harpers Aunt Jade previously wrote on a fundraising event she did-
In February 2012, Charlotte found out she was pregnant.
In November 2012 Teddy Joe Powers was born and Joe and Charlotte were amazing parents. Despite having a few problems with reflux and colic, Ted was a happy baby and Joe and Charlotte had they're amazing little family.
At Ted's first birthday party in 2013, we found out that Charlotte had fallen pregnant so quick & that I'd be an auntie again. We awaited with excitement to find out the gender of the baby. On 21st January 2014, at a private gender scan, Joe & Char had some heartbreaking news. The scan showed the baby - that was a girl - had a heart defect, that it didn't look as though it had formed properly. They were referred to Great Ormond Street within 24 hours.
At this time the family was washed with a complete contrast of emotions from sheer excitement that a little girl was going to be welcomed to the family to relentless nerves and worry as to the uncertainty of what the future will hold for their little girl.
The news from GOSH didn't get any better but their optimism was reassuring to everyone. Great Ormond Street Hospital has a world renowned reputation for the outstanding work, love and support they provide for ill children facing life threatening situations. They knew they were in good hands.
Harper was diagnosed with Heterotaxy Syndrome which is a left atrial isomerism. She had 1 chamber at the top instead of two and a hole between the bottom two. The condition causes the body to replicate one side, either the left or the right, so instead of having a left and right side she just has one big left, which also then means all the organs which should be on the right hand side of the body are on the left instead.. This caused more issues as it then meant she had a bowel blockage. This was operated on at The Evelina Children's Hospital as an emergency. Her intestines were so severely twisted we were told that she was lucky to be alive. The amazing surgeon said that some of the damage was unrepairable.
This day last year, Harper went in for open heart surgery. We put her life into the hands of Victor Tsang, who told us Harper's heart was so complicated it wouldn't be fixed in one operation. The operation that was supposed to take five hours, it took three and little did we all know, this man and his team were to fix Harper's Heart in that one operation and defy all odds. This was just the beginning though. Once again, Charlotte and Joe put Harper's life into the hands of Manasvi Upadhyaya on 24th June. After the surgery took three times as long, he explained to us that it was so severe and so much worse than we had all thought. These two men are the reason Harper is still here today. They need the recognition they deserve. How this little girl lives and smiles with so many problems that are unseen to the eye astounds me. Today is Harper's Heart day. Happy Heart day Harper! #harpersheart #teamharper
Don't feel sorry for me,
when you see what sits beneath my vest.
I battled and fought hard for this,
A medal engraved upon my chest.
Don't bully me, when you see,
I can't keep up in sport,
I'm stronger than you know,
I'm just tired from battles fought.
Don't define me, when you see,
That we don't look the same.
I'm not my heart condition,
So please call me by my name.
Be happy for me, when you see,
This medal I wear with pride.
For if I didn't have it then,
I would have surely died.
Be proud of me, when you see,
What sits beneath my vest.
Applaud all I have overcome,
That I've always done my best.
Befriend me, when you see,
The happy life I live,
This medal, it's stories to share,
And so much love to give.
Don't feel sorry for me, when you see,
What sits beneath my vest.
This medal means I'm surviving,
And for that, I'm truly blessed.
Harper Jade Powers was born on the 21st June 2014. She has faced a few problems and has been in and out of hospital, but what a fighter. Her strength is inspiring.
https://www.facebook.com/HarperHeartBaby/
My name is Charlotte I'm a good friend of Harpers mum and I have put this together with a few of her friends and her Aunt Jade. We as her friends feel helpless when it comes to doing something to help this family through the hard times so wanted to set up this gofundme page to try and put a smile on their faces again and make some beautiful memories for them!
We would love to send this lovely family on a family holiday to Disneyland Paris as I couldn't tell you how amazing it would be for them all to have this time together! Any donations would be so great fully received! Harper we love you keep fighting beautiful xx
Please read below a segment that Harpers Aunt Jade previously wrote on a fundraising event she did-
In February 2012, Charlotte found out she was pregnant.
In November 2012 Teddy Joe Powers was born and Joe and Charlotte were amazing parents. Despite having a few problems with reflux and colic, Ted was a happy baby and Joe and Charlotte had they're amazing little family.
At Ted's first birthday party in 2013, we found out that Charlotte had fallen pregnant so quick & that I'd be an auntie again. We awaited with excitement to find out the gender of the baby. On 21st January 2014, at a private gender scan, Joe & Char had some heartbreaking news. The scan showed the baby - that was a girl - had a heart defect, that it didn't look as though it had formed properly. They were referred to Great Ormond Street within 24 hours.
At this time the family was washed with a complete contrast of emotions from sheer excitement that a little girl was going to be welcomed to the family to relentless nerves and worry as to the uncertainty of what the future will hold for their little girl.
The news from GOSH didn't get any better but their optimism was reassuring to everyone. Great Ormond Street Hospital has a world renowned reputation for the outstanding work, love and support they provide for ill children facing life threatening situations. They knew they were in good hands.
Harper was diagnosed with Heterotaxy Syndrome which is a left atrial isomerism. She had 1 chamber at the top instead of two and a hole between the bottom two. The condition causes the body to replicate one side, either the left or the right, so instead of having a left and right side she just has one big left, which also then means all the organs which should be on the right hand side of the body are on the left instead.. This caused more issues as it then meant she had a bowel blockage. This was operated on at The Evelina Children's Hospital as an emergency. Her intestines were so severely twisted we were told that she was lucky to be alive. The amazing surgeon said that some of the damage was unrepairable.
This day last year, Harper went in for open heart surgery. We put her life into the hands of Victor Tsang, who told us Harper's heart was so complicated it wouldn't be fixed in one operation. The operation that was supposed to take five hours, it took three and little did we all know, this man and his team were to fix Harper's Heart in that one operation and defy all odds. This was just the beginning though. Once again, Charlotte and Joe put Harper's life into the hands of Manasvi Upadhyaya on 24th June. After the surgery took three times as long, he explained to us that it was so severe and so much worse than we had all thought. These two men are the reason Harper is still here today. They need the recognition they deserve. How this little girl lives and smiles with so many problems that are unseen to the eye astounds me. Today is Harper's Heart day. Happy Heart day Harper! #harpersheart #teamharper
Don't feel sorry for me,
when you see what sits beneath my vest.
I battled and fought hard for this,
A medal engraved upon my chest.
Don't bully me, when you see,
I can't keep up in sport,
I'm stronger than you know,
I'm just tired from battles fought.
Don't define me, when you see,
That we don't look the same.
I'm not my heart condition,
So please call me by my name.
Be happy for me, when you see,
This medal I wear with pride.
For if I didn't have it then,
I would have surely died.
Be proud of me, when you see,
What sits beneath my vest.
Applaud all I have overcome,
That I've always done my best.
Befriend me, when you see,
The happy life I live,
This medal, it's stories to share,
And so much love to give.
Don't feel sorry for me, when you see,
What sits beneath my vest.
This medal means I'm surviving,
And for that, I'm truly blessed.
Harper Jade Powers was born on the 21st June 2014. She has faced a few problems and has been in and out of hospital, but what a fighter. Her strength is inspiring.
https://www.facebook.com/HarperHeartBaby/
Donations
Organizer
Charlotte Pritchard
Organizer