Hannah Bonham is 17 years old. She has already had more medical problems & surgeries than most people experience in a LIFETIME! Hannah is a rising Senior at North Augusta High School (We live in North Augusta, SC). Hannah was born on August 3, 1997 and at the very young age of 1 year old, she suffered a stroke and began having seizures (multiple). After going through extensive procedures, she was diagnosed with a rare brain malformation - Brain Veinofgalen Malformation . There was no medical treatment available and she was released from the hospital. Over the years, Hannah has continued with delibitating seizures and with each seizure, we were forced to rush her to the ER for Xrays in order to rule out a brain bleed (hemorrhage). This extremely RARE Malformation was so large you could hear the blood rushing to her brain. It was evident that we had to seek medical treatment for our PRECIOUS BABY! After researching, we found there were only 5 neurosurgeons in the entire US that had the expertise to treat her disease. We have traveled to Gainsville, FL and the DR. told us without brain surgery, Hannah would die or suffer severe brain damage. Three months later, Hannah underwent a craniotomy with a new radical procedure. She was in ICU for sometime and miraculously survived the surgery. There were still 8 additional procedures to treat her brain malformation over a span of 5 years. Each time we traveled back and forth to Florida...Hannah would recover in the ICU. When Hannah was 10 years old, she needed to be re examined, with yet another brain angiogram. We traveled to Nashville, TN, where her neurosurgeon had previously relocated. We were devasted when the procedure revealed a new brain malformation - this was an AVM - the attempted treatment for this was unsuccessful. During Hannah's pre-op checkup, the Dr.'s discovered that she had a rare heart defect that would require open heart surgery. The heart surgery was not something that was medically advised, being that she already had a brain malformation. We later travelled to, once again to Tennessee for treatment of the brain malformation - Hannah suffered a bleed and was unable to be treated. We were forced with the painful reality that Hannah would have to undergo another craniotomy. Eight months later, we travelled to Tennessee, once again for Hannah's brain surgery (craniotomy). She suffered a large brain bleed and multiple seizures. Ultimately, there were some residual problems post surgery with the left side. After a week in ICU we were released, with what was considred a success...in removing the brain malformation. One year had passed and Hannah was to have open heart surgery. Clearance from her neurosurgeon was denied the night before surgery was to have taken place...the next day. We had to have a followup brain angio to make sure the brain malformation/AVM had not grown back. Hannah was now 14 years old and we travelled to Tennessee for the brain procedure due to her heart defect - it was decided that this time she would be sedated but, awake. The procedure revealed that the brain AVM had definitely grown back. The neurosurgeon attempted to treat it and everything went wrong. We were completly devastaed when we were told that Hannah was paralyzed on her left side and that she suffered a massive stroke. Our vibrant, beautiful, talented and most importantly...OUR LITTLE GIRL would now be bound to a wheelchair. After one week, we travelled back home, where Hannah was admitted into a rehab hospital. Over the course of 6 weeks in this rehab facility, she underwent extremely extensive rehab. Hannah had to retrain her brain to regain her mobility. The stroke left Hannah with drop foot. She now requires a brace on her foot, as well as a walking cane - to walk. Her left hand has very little use, as well as stability. Hannah still continues with physical and occupational therapy weekly - to date. Finally, one year since Hannah's stroke, she was cleared for open heart surgery in Charleston, SC. There were complications - including a collapsed lung - but, the heart surgery was successful! Hannah continues to have other rare diseases. She suffers with shortness of breath and obstructive lung disease. After years of extensive workups and doctor appointments, it was discovered that she has a rare lymphatic disease affecting her lungs. She has episodes of her airway being blocked by mucus plugs. Hannah is treated for airway clearance with a vibrating vest and inhalation therapy. This disease also causes Hannah to swell, which hinders her left side hemiplegia. Once again, treatment involves traveling for her to receive the help she needs. We have have been planning on treatment when the unthinkable happened. This past April, Hannah suffered another brain hemmorhage, involving the left side of her brain. This is another type of malformation that is rare and requires expertise in treating. Our research lead us to a neurosurgeon in New York City. We will be traveling back and forth to New York for testing and possible surgery. Her 1st appointment in NY is going to be on July 31, 2015. Lord willing, we plan for treatment in Philidelphia once Hannah is able. The burden of not having the funds has been a heavy on our family. When your childs needs specialized treatment(s) as I have described in this letter, you will do anything to make sure this happens....this is what is left to save her life - these are our prayers! The costs of her medical expenses, travel, lodging, as well as the loss of income for our family...has given us no choice but to reach out and ask for HELP! We are greatful for any help we can get through this GOFUNDME acount. We are so greatful to each and everyone of you!
Thank you all so much & God Bless! Cathy & Danny Bonham (Hannah Bonham's parents)