Donation protected
On the approach to the big 40 (10th Dec), I’ve been asked the inevitable “what do you want for your birthday?’ and honestly all I want is for my daughter Milly, who is 4 in March, to be able to walk independently.
After not meeting gross motor milestones, Milly was diagnosed with Cerebral Palsy at 15 months, just 3 weeks after I started a new job. We were absolutely devastated and this raised more questions than it answered as to how this would affect her in the future. It threw us into a world of navigating therapy and support services that felt all consuming.
(I’m sorry, I know there are good friends reading this for the first time, I apologise my best intentions of contacting you personally didn’t happen as life got busy).
Milly is a gorgeous, bright, little girl who never stops talking. She currently walks with a walker and splints/AFO’s and can take some independent steps in a controlled environment. This is after 2.5 years of physio, occupational therapy, intensive therapy, botox injections in her legs, hydrotherapy, riding for the disabled, specialist swim lessons and home therapy.
While we are grateful for some government funding Milly has received, we also self fund a lot of her therapy ourselves, sacrificing trips back to see family and friends. Just before Milly was 2, I took her to NAPA (Neurological and Physical Abilitation Center) in Sydney for a 3 week intensive therapy course. The time off work and cost of this meant I was unable to go back to the UK to be a bridesmaid for my own Maid of Honour’s wedding – nothing else would have stopped me being there for Carly, but I had to put Milly first.
Intensive therapy is where big gains can be made and there are now a couple of great options available in Perth that we’d love Milly to benefit from. However we are in a funding gulf as Australia is moving to the NDIS (National Disability Insurance Scheme) the roll out of which is way behind schedule. We were supposed to join the scheme in July but are still waiting. This coupled with reduced income due to the recent arrival of Milly’s much wanted little sister, we’ve decided to reach out and ask for help so we can support Milly reach her potential. Early intervention is crucial in securing the best outcomes for kids with CP and we need 2020 to be a goal-kicking year for Milly before she starts full time school.
So for my birthday, for Christmas, for Milly, if you are able to help, however much, it all adds up, we would be so grateful. Please share away with your networks too and let’s help Milly get walking. All donations will be spent on therapy for Milly.
Thank you in advance, big love from us x
After not meeting gross motor milestones, Milly was diagnosed with Cerebral Palsy at 15 months, just 3 weeks after I started a new job. We were absolutely devastated and this raised more questions than it answered as to how this would affect her in the future. It threw us into a world of navigating therapy and support services that felt all consuming.
(I’m sorry, I know there are good friends reading this for the first time, I apologise my best intentions of contacting you personally didn’t happen as life got busy).
Milly is a gorgeous, bright, little girl who never stops talking. She currently walks with a walker and splints/AFO’s and can take some independent steps in a controlled environment. This is after 2.5 years of physio, occupational therapy, intensive therapy, botox injections in her legs, hydrotherapy, riding for the disabled, specialist swim lessons and home therapy.
While we are grateful for some government funding Milly has received, we also self fund a lot of her therapy ourselves, sacrificing trips back to see family and friends. Just before Milly was 2, I took her to NAPA (Neurological and Physical Abilitation Center) in Sydney for a 3 week intensive therapy course. The time off work and cost of this meant I was unable to go back to the UK to be a bridesmaid for my own Maid of Honour’s wedding – nothing else would have stopped me being there for Carly, but I had to put Milly first.
Intensive therapy is where big gains can be made and there are now a couple of great options available in Perth that we’d love Milly to benefit from. However we are in a funding gulf as Australia is moving to the NDIS (National Disability Insurance Scheme) the roll out of which is way behind schedule. We were supposed to join the scheme in July but are still waiting. This coupled with reduced income due to the recent arrival of Milly’s much wanted little sister, we’ve decided to reach out and ask for help so we can support Milly reach her potential. Early intervention is crucial in securing the best outcomes for kids with CP and we need 2020 to be a goal-kicking year for Milly before she starts full time school.
So for my birthday, for Christmas, for Milly, if you are able to help, however much, it all adds up, we would be so grateful. Please share away with your networks too and let’s help Milly get walking. All donations will be spent on therapy for Milly.
Thank you in advance, big love from us x
Organizer
Hannah Edmondson
Organizer
Coolbinia, WA