
Half Marathon for Xander's brain tumour treatment
Donation protected
On Sunday March 3rd we’ll be running the Paddock Wood Half Marathon in Kent to raise money for the tremendously brave Alexander.
Xander was diagnosed with an aggressive brain tumour aged just 7 in December 2020. After initial surgery to remove the tumour, it grew back quickly and spread to his spine. Xander then had further surgeries on his brain and spine and full head and spine radiotherapy, but even then he was given just a 20% chance of survival with the treatment options available on the NHS.
Since then, his incredible family have dedicated themselves to finding and paying for private treatment for him, and the brilliant news is that the treatment is working!
A decision on this treatment becoming available on the NHS is expected at the end of May this year, but until then his family will have to keep funding his private prescriptions and targeted immunotherapy treatment in Germany. Just last week they received an invoice for over £11,000 for a 3-month cycle of his inhibitor treatment at the Royal Marsden.
We want to do what we can to help Xander and his family by asking you to sponsor us. Any donation you’re able to make will be so gratefully received. And just knowing that we’re running for Xander will keep us going the full 13.1 miles!
Thank you so much in advance,
Vic, Susie, Katie and Louisa x
For more information about Xander please see brain.tumour.warrior on Instagram, and watch this video https://www.youtube.com/watch?v=xx3rvAAnTTo
Information about pending NICE approval of treatment of Xander's type of tumour: https://www.nice.org.uk/guidance/indevelopment/gid-ta11006
Co-organizers (2)
Victoria Moss Stevens
Organizer
England
Susie Palfrey
Co-organizer