Hadli's Heroes
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Please help how you can, even by just sharing this page along to others in your network.
In October, our family's life changed forever. Our niece, Hadli, just 3 months old, began struggling with uncontrolled seizures. She was quickly admitted to Cincinnati Children's Hospital and within a week diagnosed with Tuberous Sclerosis Complex (TSC).
TSC is a rare genetic disease that causes benign tumors to grow in the brain and other vital organs. The genes responsible for controlling tumor growth in the body are defective. These tumors can cause negative effects such as seizures and other life-affecting symptoms.
Life has been a non-stop battle since October. Through changes in medication and countless seizures Hadli remains to be a fighter and is meeting all of her milestones. Hadli has been given numerous anti-seizure medications, as well as ones in combination, and in all sorts of dosages and amounts.
Her diaphragm is partially paralyzed and requires her to wear oxygen when she sleeps. At times she has gone through hundreds of seizures in a single day. For a twenty-four day span, Hadli never left Children's Hospital. Even after being released, Hadli was readmitted just days later for low oxygen levels and more seizures. Her seizures have progressed to the point where medication alone is far from a solution.
Hadli's doctors, Dr. Franz, Dr Krueger and the TSC team at the world's leading clinic for treating TSC(based at Cincinnati Children's), has now recommended epileptic brain surgery as the best option for Hadli to continue to progress and be loving sweet Hadli we know and love. Hadli has been referred to one of the country's top pediactric neurosurgeons at Texas Children's Hospital in Houston, Texas. She will has been giving a tennative date of April 20tg to go down there for testing with surgery to follow after.
We are here to ask for your help on behalf of Jobi (Herren) and Brady Feck. As if watching your daughter struggle isn't hard enough, there are also financial burdens. Medical costs, expensive medications, EEGs, therapies, flights, car rental, food, hotel. The life is far from their usual in Williamsburg. Brady has been working hard to make ends meet, but now is the time help is needed. All funds will go directly to the family's costs surrounding the surgery and rehab process.
Please help how you can, even by just sharing this page along to others in your network. Any amount left over will be donated to Cincinnati Children's TSC Clinic for further reasearch. Thank you all for donating and being Heroes for Hadli!
Please help how you can, even by just sharing this page along to others in your network. Thanks!
Hit the 'Subscribe to Updates' button below to follow Hadli's journey. We will do our best to update as things progress.
In October, our family's life changed forever. Our niece, Hadli, just 3 months old, began struggling with uncontrolled seizures. She was quickly admitted to Cincinnati Children's Hospital and within a week diagnosed with Tuberous Sclerosis Complex (TSC).
TSC is a rare genetic disease that causes benign tumors to grow in the brain and other vital organs. The genes responsible for controlling tumor growth in the body are defective. These tumors can cause negative effects such as seizures and other life-affecting symptoms.
Life has been a non-stop battle since October. Through changes in medication and countless seizures Hadli remains to be a fighter and is meeting all of her milestones. Hadli has been given numerous anti-seizure medications, as well as ones in combination, and in all sorts of dosages and amounts.
Her diaphragm is partially paralyzed and requires her to wear oxygen when she sleeps. At times she has gone through hundreds of seizures in a single day. For a twenty-four day span, Hadli never left Children's Hospital. Even after being released, Hadli was readmitted just days later for low oxygen levels and more seizures. Her seizures have progressed to the point where medication alone is far from a solution.
Hadli's doctors, Dr. Franz, Dr Krueger and the TSC team at the world's leading clinic for treating TSC(based at Cincinnati Children's), has now recommended epileptic brain surgery as the best option for Hadli to continue to progress and be loving sweet Hadli we know and love. Hadli has been referred to one of the country's top pediactric neurosurgeons at Texas Children's Hospital in Houston, Texas. She will has been giving a tennative date of April 20tg to go down there for testing with surgery to follow after.
We are here to ask for your help on behalf of Jobi (Herren) and Brady Feck. As if watching your daughter struggle isn't hard enough, there are also financial burdens. Medical costs, expensive medications, EEGs, therapies, flights, car rental, food, hotel. The life is far from their usual in Williamsburg. Brady has been working hard to make ends meet, but now is the time help is needed. All funds will go directly to the family's costs surrounding the surgery and rehab process.
Please help how you can, even by just sharing this page along to others in your network. Any amount left over will be donated to Cincinnati Children's TSC Clinic for further reasearch. Thank you all for donating and being Heroes for Hadli!
Please help how you can, even by just sharing this page along to others in your network. Thanks!
Hit the 'Subscribe to Updates' button below to follow Hadli's journey. We will do our best to update as things progress.
Organizer and beneficiary
Jesi Christian
Organizer
Cincinnati, OH
Jobi Herren/Feck
Beneficiary