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Hi. My name is Erin. I am fund raising for our remarkable child Trinity Rose Walker.
On December 15th everything seemed like a normal day. But at around 4.30 pm Trinity had horrible seizure. It stopped her heart and a mother's worst nightmare I had to do CPR while her father pleaded with emergency services to please hurry we were losing her. We managed to get her back but she immediately went back into the seizure. The fire department arrived to assist then ambulance finally made it and they came in to take over. In horror we watched as they tried to stabilize our daughter so they could take her to the hospital. I rode with her in ambulance and her father followed with our infant son to the hospital. At the hospital they tried and failed to stop the seizure. They hit her repeatedly with multiple drugs to try and control her convulsions and openly admitted that they were not equipped to deal with this. We desperately watched on as our child was hit with Ativan, fentynal, lorazapam, epinephrine and as a last resort Keppra. Then as they were unable to stop her seizing, they called other hospitals better equipped to deal with her situation. Due to inclement weather and many hospitals being full, they were able to get Trinity ready to head to CHEO in Ottawa. She was put into a medically induced coma as we watched in horror. She had a catheter put in, breathing tubes, 2 I.V lines and so many different machines attached to her. She was unable to breathe on her own. Our beautiful little girl, with undying energy was so still and surrounded by so many medical staff and professionals it's still difficult to comprehend. She was then air lifted with me (her mother) accompanying her to Ottawa. Her father, grandmother (my mother) and our soley breastfed son driving to meet us there. She was admitted into the Childrens ICU unit and again hooked up to so many machines and more tubes and wires added to monitor her condition. Its hard to believe such a tiny body even has enough room to have all of them tubes and cables and machines that were attached to her. Trinitys journey was far from over. Once in CHEO, they ordered a CT scan and spinal tap. The CT scan was done and then after what seemed a lifetime Meema dad and Peter (baby brother) arrived. In the early hours of the morning.. 3 am area, Trinity was given her spinal tap. If ever there was a time to thank God your child was in a coma, that was it. What a horrible thing for ANYONE to have to endure!! The next day they slowly started to bring her to consciousness, she was conscious but not awake. CT scan came back that there were no tumors or stroke that caused the seizure (thank god) but still no answers as to what did. They then tested her for rsv, covid and more things but I can't remember all of the list they gave me. They also order an eeg. A lovely woman hooked her up to the eeg, while trying to give us hope that everything would be alright. (Thank you kind lady. I'm sorry I can't remember your name tho I think it may have been June) Shortly after the eeg, Trinity started to come around a bit more. And was awake enough to actually start responding a little bit. She could cry and make eye contact briefly. She could reach at her daddy, myself and Meema. She was actually seeing us. The relief of my daughter simply recognizing our existence in the room was such a relief I can't even begin to describe it. We then waited for a neurologist to come to speak to us. They told us that Trinity tested positive for rsv and it is suspected that the fever that comes with rsv caused her seizure. Well... tho now we have an answer it's not something that offers much comfort as children get fevers quite frequently. And she will always be at risk that a fever could cause this to happen again. In our Journey and stay, we have financially exhausted ourselves. (SHES MORE THEN WORTH IT!!) Our other children have been traumatized as they were all sitting and watching Malcolm in the Middle on Disney as Trinity went into the seizure. It was our 8 year old daughter who first noticed something wasn't right (My Hero!!) Trinity is now home finally but there are still going to be more tests necessary, hotel stays, travel expenses and let's not forget the most important.... her medications. They are very expensive and utterly necessary, she is on anti seizure medication.. Keppra for the foreseeable future and was also prescribed emergency Ativan in case she is to go into a seizure again. To try and stop or at least slow it down until emergency services can get to her. Our Christmas this year will consist of being so greatful she made it. It's the greatest gift we could ask for. Our other children agree. But now we are left still having to make car payments, rent, medical expenses, travel,hotel stays after her tests and upkeep of her care. Our once vivacious and forgive me for lack of a better term... little ping pong ball of a little girl, has become so still, so quiet and struggles to walk. She is very unsteady and stumbles. She hardly talks now. She is struggling to eat. Her Daddy has had to take time off work to help care for her and the other children and I myself am a stay at home mother, homeschool teacher, and restaurant to 7 children. We are struggling. We are terrified and we are asking for a little help to make sure that trinity has everything she needs to be given the best chance possible at a full recovery. We are going to need to install video monitors in her room among other necessary medical devices to ensure her safety. This is long. I apologize but I want to be clairvoyant. I will end this here but if anyone has any questions concerns or suggestions I implore and welcome you to reach out to one of us, myself, or her father Tylar Walker. Thank you for taking the time to read this. And Thank you to anyone who chooses to donate (any little bit helps) to our cause or share our story.

