Emergency medical fund

I have a long history of having strange and unusual things happen to me.  I fell 35 feet and broke 37 bones when i was 22 years old.  I have had to have 10 different surgeries on my left arm alone. I have a genetic disorder called ehlers-danlos syndrome and was diagnosed with both vascular and hypermobility EDS. This has caused many unique problems and complications. Following a car wreck in February of 2017 I was taken to the emergency room where they discovered I had ascending aortic aneurysm, a dislocated shoulder, a rotator cuff tear, and a torn ligament in my knee. Due to the ehlers-danlos syndrome I was sent to Chapel Hill to UNC to do the repair. There I was seen by a cardiovascular surgeon and a thoracic surgeon. Because of the problems from the ehlers-danlos syndrome I had to have the open heart surgery as well as a replacement for the ascending aorta on May 1st 2017. I had a total reverse shoulder surgery on May 31st 2018. I had knee surgery on April 24th 2019. I had experienced severe pain and major swelling through all these procedures. After several tests had been ran I was diagnosed with reflex sympathetic dystrophy in August of 2019. I began treatments the next week. I had weekly treatments for 10 consecutive weeks. After a couple of weeks without treatment the pain and swelling returned so I was given weekly treatments until December 23rd 2019. They had scheduled my next treatment for the first week in January 2020. On December 31st 2019 I began having severe chest pain. My legs were swollen and the pain felt like I was on fire. I was taken to the emergency room by my mother. After having multiple tests ran including an EKG we were told that I showed signs of a heart attack but my blood work was okay and I was allowed to return home. On January 5th pain grew so severe I was taken by ambulance to the emergency room where are they did an EKG and MRI a CT scan and blood work and discovered I had had a heart attack. I was placed in the cardiac unit of the hospital and on the 7th of January I had a heart catheterization.  during the consultation with the heart surgeon they told us that the reflex sympathetic dystrophy had moved into my organs and that combined with the vascular ehlers-danlos syndrome, which alone has a median life expectancy of 48 years, and the complications with the hypermobility ehlers-danlos syndrome which is a collagen defect. but with the tests showing the damage both to my liver and my kidneys as well as to my heart, lungs and eyes shows that my life expectancy is now six months to a Year. At the time I was 48. This was quite a shock to my entire family. We had all been struggling with the median life expectancy of  vascular EDS,  the fact that i also had hypermobility EDS,  and then was diagnosed with RSD (nicknamed the suicide disease because it is the most painful disease known to man). Both conditions are extremely rare and most doctors have very little if any experience with one much less both. After being released from the hospital I  was overwhelmed to say the least. I have been with the same doctor for the past 20 years for pain management issues with my EDS and he has been working with me for my RSD treatments as well. He worked with me to find a specialist who is not only  a specialist in both conditions, he is the world's leading expert in them. He is a  professor at Harvard University and Brown University.  He agreed to see me to work on a treatment plan for slowing the progression of the diseases. He said that I would have to travel to Rhode Island to have a full evaluation and would have tests and a treatment plan specifically designed for my two rare diseases as well as the damage caused by various injuries,  surgeries, heart attack,  dislocations , broken bones and such. My doctor here in Hendersonville faxed him my medical records for the last 20 years and they called me from Rhode Island to get my address so they could mail me the paperwork for my initial appointment.  I was asked to call back on Monday morning to see how fast we could get me in.  That was in March.... and the Monday after that call was the first day of this now pandemic and i am still waiting for my appointment and this is not  covered by any insurance because it is considered experimental...therefore i have to pay upfront for it... and it is $1200.00 plus the money for travel expenses,  sleeping accommodations, and food. This appointment is my last hope to  be able to find a way to extend my life and be able to see my Grandkids grow up and i have been saving every cent i can for the past couple of months but i simply don't have time to spare. . I am reluctantly asking for help with this and my cousin and brother both told me today...(which by the way is my 49th birthday) that they both wanted me to set up this go fund me page so i can get the money together so i can get to Rhode Island and  hopefully get to stay with my loved ones longer. God Bless You all for your thoughts and prayers and for your help with this extremely difficult time in my life