Matteo’s Journey

On behalf of a dear friend and sister Vanessa McCray… I was given permission to share the transparent story of baby Matteo. Many of you have probably noticed Vanessa’s frequent post surrounding Matteo’s current health condition. Matteo was diagnosed with a neurological disorder called HERC2 which is autosomal recessive - meaning both parents are carriers. He has developmental delays, hypotonia, seizures, reoccurring uti’s, GI issues, and respiratory issues. Matteo requires total care requiring his mother Vanessa to do 100% of caretaking and more for his needs. Matteo is unable to walk, crawl, sit up or simply even grasp things with his hands, unlike most toddlers his age. Vanessa’s weekly commute is roughly about 45 min to and from, for all his hospital appointments, therapy and doctor visits. He requires PT/OT, speech therapy, he also has educators for hearing and visual impairments and sees specialists such a neurologists, gastroenterologist, and urologist. My sweet and hard-working friend roughly misses about 24-36 hours (sometimes more) a month off from work due to Matteo’s needs, as he is hospitalized more than often. Matteo recently failed a swallow screen and requires a PEG tube, he has been in the hospital past week struggling to adapt to his temporary NG tube. His surgery is now cancelled for his PEG tube as be is battling secondary infection in upper respiratory system causing respiratory distress. It is unsure how much longer little Matteo will be kept, admitted or when they will reschedule his surgery. On behalf of such a notable Mother, I am asking for any donation, support, prayers, or comfort be sent their way, during this time.

Anything you can give is truly a blessing ❤️

#MatteoStrong