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Hi, my name is Kathy Jarman. I’m the Aunt of Shaw Morgan. Shawn and Audrey are expecting twin girls due June 24th 2024. They found out early into their pregnancy that baby A (Amyra) has a rare congenital heart defect called HLHS. Hypoplastic Left Heart Syndrome is when the left ventricles in the heart never developed so the right side of her heart is doing double the work to output blood into the body and the lungs. Recently Shawn and Audrey bought a home in Cadillac and are currently traveling back and forth to Grand Rapids (200 mile round trip) for weekly appointments. The girls unfortunately will be delivered premature and have to spend sometime in the NICU at Helen Devos Childrens hospital. With the information we have now baby B (Aurora) will only be their for a short period of time while baby A (Amyra) will be in the NICU for atleast two months due to her condition and needing multiple procedures in the beginning of her life to help her heart work better and not so hard. From the information we have been given baby A (Amyra) will need atleast 3 possibly 4 surgeries by the time she turns 5 years old. These procedures are not a fix all, she will have a very long fight ahead of her but we have faith that she is in the best possible hands.
Audrey is currently being admitted to Spectrum Health Blodgett Hospital (3/29) to continue close monitoring to the girls and their hearts as we have had some tests come back concerning. At this time we are playing it day by day.
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Katherine Jarman
Organizer
Cadillac, MI