Doctors's first thought it was spinal muscular atrophy - which would be horrible as the spine wears away to nothing. The Doctor ruled this out immediately, and he was very happy he didn't need to give this type of news. However, Greenlee is being tested for Congenital Muscular Dystrophy. Doctors are stating she is likely under this category. This is a situation little Greenlee might not be able to walk or talk. This will obviously be life changing for Greenlee, and the entire family. Matt and Molly will also be tested for a recessive gene. Followed up with a muscle biopsy Greenlee. There is a likelihood that a recessive gene is causing this, but many tests are being conducted to understand what is causing her weakness, and minor imobilities. He doesn't think she has any brain damage. But something is going on. The Doctor said she was a "puzzle" to him. CK blood tests were completed to test for any muscle deficiency. Her Doctor's really seem to think it's either the muscles, spine, or nerves. He has ordered an MRI, but not to look for any damage, just to see how her brain is responding with the spine and muscles, her cognitive is good which is great news. So far, they have started physical therapy, as her feet are turned inward, resembling that of club feet, but he said it's not club feet, she's just really tight. He also said the need to work with her thumb was petinent, as it keeps moving toward the inside, and this can be helped with that of physical therapy. Greenlee will see a pediatric musculoskeletal doctor next week in Iowa City, and likely have genetic testing done to see what her actual diagnosis is. Her CK lab levels came back abnormal. The muscle cells in your body need CK to function. Hers are somehow breaking down. So, further testing will be necessary. Matt and Molly will have to go back to Iowa city for the MRI since she needs to be sedated and follow up with Doctors in 2 months. In the mean time just keep working with her. For now, Matt and Molly are taking Greenlee to many tests, the next one being the Genetic Testing to confirm if she has Congenital Muscular Dystrophy, which we pray is overruled; continued MRI's, Doctor's visits, physical therapy, chiropractors, and to and from different cities. Any and all help will be greatly appreciated, as this will help towards her bills, even gas to go back and forth from Des Moines to Iowa City. As a long-time sister and best friend to Molly, this woman will do whatever it takes to be strength, love and guidance to her little girl. Help her heal, wipe her tears and provide her smiles. She will go to the ends of the earth to find the cause and try to help her lead and live the healthiest of lives. Matt is holding down the fort and being the best Daddy to his babies, supporting his wife as she ventures to all of these appointments, always providing time in between multiple jobs to be the loving support system he is. I pray this helps release some of the 'of this world' stresses that can allow them to focus on her road to recovery. They are true strength and love. I thank you in advance for your continued support, love and help! So do Matt and Molly.
Thank you, Jenny
From Molly -
"My sweet Greenlee, I can't believe you are already 2 months young. I can't wait to see you grow, and overcome these obstacles. Just know, Matt and I love you, today, tomorrow, and forever.
2 Corinthians 12:9-10:
And He has said to me, "My grace is sufficient for you, for power is perfected in weakness." Most gladly, therefore, I will rather boast about my weaknesses, that the power of Christ may dwell in me. Therefore I am well content with weaknesses, with insults, with distresses, with persecutions, with difficulties, for Christ's sake; for when I am weak, then I am strong."
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