Graysons 13 Days of Hope

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Graysons 13 Days of Hope

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Grayson Thomas was born on December 30th 2024 @ 8:33am. He was born with a heart condition called Hypo-plastic left heart syndrome. For those who don’t know what that is, Graysons left (side) ventricle was under developed/ non existent. Grayson had to undergo surgery right after being born where the surgeons had to perform an operation to open up his atrial septum for blood to flow better through his body which was unsuccessful. Around 9:30am they had to go into the OR and operate on Grayson to remove the atrial septum and clamp his pulmonary arteries (that flow to his lungs) so his lungs don’t flood with blood. At that time as well he had to be put on an Ecmo Machine which would become his main life support for the duration of his life on earth. Upon the success of the surgery he was then moved to his room in the PCICU (Pediatric Cardiac Intensive Care Unit) around 5pm. His mother Maria and father Nathan were able to see their beautiful baby boy for the very first time at 6:30pm. Over the course of the 2 weeks of being on this earth he was overflowed with Love from all his family members. Nathan and Maria would spend every single day with their son Grayson as he would continue to fight and get stronger to be removed from the Ecmo machine. Every single morning Grayson would be greeted by his mother and father, as they would spend ALL day with him by making sure that baby Grayson was in great hands of nurses and other medical professionals . Nathan & Maria would make sure baby Grayson wasn’t in any pain and that he was comfortable by receiving all attention and care he needed, in hopes for Grayson to get stronger and healthier over time. Within the first week of being in the hospital Grayson was improving so much that he was surprising all the nurses and doctors. Grayson was scheduled to go through a clamp trial where they would see if Graysons body and organs could withstand being off the Ecmo machine. Monday January 6th at 11:30am the doctors started the trial and had an Eco test done to see how his little heart would do. When they found out that there was an excessive amount of fluid around his lungs, the doctors decided to keep him on the Ecmo machine. Over the next couple of days Graysons body struggled to get rid of the excessive fluid which was worry some to the nurses and doctors. Frustration from Graysons parents grew because the doctors couldn’t find out the reason for the excessive amount of fluid in Graysons body. Grayson fought every single day with all of his little heart could. He would peak to see who was there visiting, there would be times where he would open both of his eyes and look around to see what was going on in his room. Family would come and go where they would either be meeting Grayson for the very first time or visiting him again because they couldn’t get over how precious and strong he was. He was our little precious miracle baby and will be deeply missed. God had other plans for Grayson, he was only on this earth for 13 days but he touched everyone’s heart in different ways that cannot be explained. Grayson went peacefully on January 11th @ 8:58pm.

Organizer

Nathan Kotulski
Organizer
Joliet, IL

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