✨Grant some wishes for Harlyn ✨

As so many people have requested we set up a page… ♥️

We are so grateful to you all, for your continued support for Harlyn and our little family.

Harlyn was unwell at the beginning of June 2024. We received the devastating news that she had a large tumour in her brain stem. This was then confirmed to be DIPG. An incredibly rare but very aggressive cancer that was untreatable.

Due to the location of the tumour, a biopsy would not be possible and so we could not be given any timeframe to work with.

on average, a child diagnosed with DIPG passes within 8 months.

We cannot be certain when the tumour started forming, only that it is large and already spreading.

Harlyn was very poorly and lost her ability to walk unaided, her speech was very slow and slurred , and she had difficulty swallowing. It was not looking good.

Thankfully, very high doses of steroids reduced the swelling around the tumour and she improved massively over a 48 hr period.

Harlyn has now bravely completed a concentrated radiotherapy treatment plan, in the hope that it will halt the tumour growth, and potentially gain us, up to 3 months extra time together.

This is all the treatment that can be offered.

We are now home from Bristol Hospital and working out how to make this time count.

Harlyn is such a kind hearted soul. She would do anything for anyone. She doesn’t ask for much and is always found covered in dirt, in her mud kitchen. That’s her happy place.

Harlyn has had two big wishes for a long time. One is to go to London to see the famous landmarks. This is currently being arranged.

The second is to go to Disneyland in Paris.

We are looking into the best way to do this. She will need to travel by the Eurostar train, as flying is not an option.

This can only happen if we can get a specialist company to arrange the medical insurance she requires. There are very few who deal with terminal illnesses and they are extremely expensive!

But we shall try our hardest to get her there, one way or another.

Any money received will help towards her trip costs etc

If it is not possible to get her to Disney, then we will grant all the ‘little wishes’ for her, that we can possibly squeeze in!

Please only donate what you can afford!

If you are unable to donate, then that’s absolutely fine too! We just hope this can spread awareness of this awful disease. Please trust your instincts with your own children!

We are all so grateful for your support along her journey. We can’t thank you enough.

She is an inspiration to us all. A beautiful little girl, who deserves all the happiness we can bring ♥️

Let’s grant her some wishes ✨✨