Loving Lacey Mae
Donation protected
Our Daughter Lacey Mae was born with CDH, Congenital Diaphragmatic Hernia, which is a condition where she developed a hole in her diaphragm causing her bowel intestines, stomach, and spleen are up in her chest cavity making it difficult for her lungs to grow and causing her heart to be on the wrong side. She also has abnormal vertebrae in her spine that we are unsure how /if she will be effected by it one day. The CDH is our first concern. Lacey was considered a close to moderate case during my pregnancy going by her LHR of 1.31 and her liver being down, but her condition was more severe once she was born. Our Baby girl needed to be placed on ecmo, a heart and lung bypass life support machine for 24 days. Her heart is very sick but continues to get better each day. Now being off ecmo, the doctors are trying to get her stable enough for corrective surgery. Once Lacey has her surgery, she will still face a lot of struggles with feeding and medication. She will need constant care even when at home and visits to and from the doctors, respiratory therapists, speech therapists, and physical therapists. CDH has a 50% survival rate and Lacey fights those statistics every day. Even when repaired, the common cold could be devastating to her and reherniation is a fear for us thats not even in the dictionary.
My Husband and I were hesitant in starting a fund but have had many familes and social workers push us to let people help us. We purchased a home a week before Lacey came into this world and have yet to be able to move in because we spend so much time back and forth at the hospital, my husbands car has broken down and we are depending on one car and family members to get us to and from the hospital each day to see our baby, Bills have started to come in for the new house and we are still paying the old bills since we can't move in yet. Lacey will also need medical attention and supplies when she's out.
We have an amazing support system who have helped with lunches, dinners, rides, and so on, but people keep asking to do more and we truly are so blessed.
If you decide to participate in donating to Loving Lacey Mae, it will help provide a safe home with everything Lacey needs to get stronger, hospital bills and others, transportation, gas, and parking charges for each day, we will also use the money to help other families we know who have children in the NICU if we see them in need, any little amount will help our little girl.
We first and foremost ask for your prayers to strengthen Lacey, our family and all the Families a part of CHOPs NICU.
Thank you all for Loving Lacey Mae!
My Husband and I were hesitant in starting a fund but have had many familes and social workers push us to let people help us. We purchased a home a week before Lacey came into this world and have yet to be able to move in because we spend so much time back and forth at the hospital, my husbands car has broken down and we are depending on one car and family members to get us to and from the hospital each day to see our baby, Bills have started to come in for the new house and we are still paying the old bills since we can't move in yet. Lacey will also need medical attention and supplies when she's out.
We have an amazing support system who have helped with lunches, dinners, rides, and so on, but people keep asking to do more and we truly are so blessed.
If you decide to participate in donating to Loving Lacey Mae, it will help provide a safe home with everything Lacey needs to get stronger, hospital bills and others, transportation, gas, and parking charges for each day, we will also use the money to help other families we know who have children in the NICU if we see them in need, any little amount will help our little girl.
We first and foremost ask for your prayers to strengthen Lacey, our family and all the Families a part of CHOPs NICU.
Thank you all for Loving Lacey Mae!
Organizer
Stephanie Nicole
Organizer
Ridley Park, PA