For My Sister and Her Family

For My Sister and Her Family My beautiful sister and her family received some devastating news on Monday 27th July 2020.  Their youngest son Rian (8 years old) has Limb Girdle Muscular Dystrophy.  It is early days yet and we still have so much to learn.  What we do know is Rian is losing the ability to walk and will eventually be in a wheelchair.  Life expectancy is unknown but could be considerably shortened. As all of you know, this amazing family would ask for nothing and give everything in return. This Go-Fund-Me page has been set up so those who don’t know what to do or say can donate something.  This family has been through so much. Danielle is living with severe pain, in and out of hospital, with Medulla Sponge Kidney Disease and this is just another hurdle they must face.  Perhaps with the money we raise, they can go on a holiday as a family and create lasting memories. I understand we are all going through our own hurdles.  Life is cruel and beautiful in equal amounts.  I know my amazingly strong sister, brother-in-law and nephews will be forever grateful for everyone’s support.  I am also beyond grateful for your generosity, kindness, support and love.  Any little donation will go to the VERY BEST home.  When I reach our goal, I will post a video of the family receiving the gift so you can all share in the moment.   Thank-you from the bottom of our hearts. 
  • Suzy Robinson 
    • $61 
    • 11 mos
  • Heather French-Purcell 
    • $20 
    • 16 mos
  • Harrison Pugh 
    • $50 
    • 16 mos
  • Jackson Rouse 
    • $24 
    • 16 mos
  • laura Hill 
    • $75 
    • 16 mos
See all

Organizer and beneficiary

Clare McGettrick 
Organizer
Molonglo ACT
Danielle McGettrick 
Beneficiary
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