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Golden Galactosemia Fundraiser

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The month of February is a special month as we celebrate Joey’s Golden 8th Birthday and Rare Disease Day on February 28th.   

In honor of these two celebrations we’re asking for your help to raise awareness for Galactosemia and to donate funds to support Research efforts underway for Galactosemia. 

This year we've partnered with the Rare Disease Day Organization to feature Joey's Story:
Rare Disease Day - Joey's Story 

Check out Joey's story featured on CBS News!
https://www.cbsnews.com/news/rare-disease-day-childrens-struggles-shed-light-on-rare-genetic-disorders/

Thank you in advance for your support!
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    Organizer

    Tara Tanella
    Organizer
    Massapequa, NY

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