Noah is a 2 and a half year old little boy, whom at the age of 15 months was diagnosed with a rare and incurable disease called NPC (Niemann-Pick type C Disease). He is the child and grandchild of very dear friends of ours. His story has touched our hearts and ignited our ambition to make a difference by raising awareness and hopefully raise funds to treat - or halt - this devastating disease.
Want to join us in making a difference? We're raising money to benefit Australians affected by NPC, and any donation will help make an impact. Thanks in advance for your contribution to this cause that means so much to me.
What is NPC? NPC (Niemann-Pick type C Disease) is a rare and fatal genetic disease caused by an unavoidable accumulation of cholesterol in every major organ. There are approximately 25 patients in Australia, including little Noah. For more information on this disease, please visit www.npcd.org.au.