Bailey's Road to Recovery
Donation protected
For those of you who don’t know Bailey, she is a sweet, fun-loving and amazingly positive 12-year old. Prior to March, she was busy with school, theatre, dance, art and spending time with friends.
In mid-March Bailey began feeling very run down and by April had progressed to chills, constant fever and entire body pain. Bailey had many visits to her pediatrician, countless tests, 3 negative Covid-19 tests, and 3 ER visits due to difficulty breathing, things began to worsen, and she began feeling tingling and numbness in her arms & legs. On May 10th, 2020 she woke up with extreme pain shooting in both legs. She was rushed to Children’s Hospital in Omaha, NE but by that time both legs were completely numb, and Bailey had no control over her lower body. She spent 7 days at Children’s, leaving with no diagnosis and no improvement.
She was then transferred to Madonna Rehabilitation Hospital where she stayed until June 10th. While at Madonna she worked hard with physical and occupational therapists and kept her spirits high, even joking that she would “have the best COVID lockdown story”. However, on June 2nd she suffered a stroke, but recovered quickly. The following day the paralysis in her legs subsided & feeling and movement returned to both legs. On June 4th her nervous system took another turn and began sending signals of non-epileptic seizures. While Bailey is now home, she still continues to have at least 3-4 seizures every hour and has extreme fatigue and nerve pain. Her doctors believe she had a virus in March, and along with stress to her body, it has turned on the “fight or fight” portion of her brain, sending constant incorrect signals to her nervous system.
Bailey’s current diagnosis is Functional Neurological Disorder with PNES seizures and is very rare, especially in children. Specialists and treatment for this condition are not easily locatable. However, Bailey will be traveling to the Functional Neurology Center in MN next week for a 5-day program that specializes in brain signals. This treatment is not covered by insurance. The Adcock family is also working to get Bailey into a longer-term specific care program in Kansas City. Unfortunately, there is a waiting list, and it is likely not fully covered by insurance.
Donations will help the Adcock Family pay for treatment not covered by insurance, travel expenses as well as insurance deductibles, co-pays and other out-of-pocket medical expense incurred since the beginning of Bailey’s treatment and hospitalization.
Please consider making a donation to help Bailey and share this GoFundMe.
We love you Bailey & the entire Adcock family!
In mid-March Bailey began feeling very run down and by April had progressed to chills, constant fever and entire body pain. Bailey had many visits to her pediatrician, countless tests, 3 negative Covid-19 tests, and 3 ER visits due to difficulty breathing, things began to worsen, and she began feeling tingling and numbness in her arms & legs. On May 10th, 2020 she woke up with extreme pain shooting in both legs. She was rushed to Children’s Hospital in Omaha, NE but by that time both legs were completely numb, and Bailey had no control over her lower body. She spent 7 days at Children’s, leaving with no diagnosis and no improvement.
She was then transferred to Madonna Rehabilitation Hospital where she stayed until June 10th. While at Madonna she worked hard with physical and occupational therapists and kept her spirits high, even joking that she would “have the best COVID lockdown story”. However, on June 2nd she suffered a stroke, but recovered quickly. The following day the paralysis in her legs subsided & feeling and movement returned to both legs. On June 4th her nervous system took another turn and began sending signals of non-epileptic seizures. While Bailey is now home, she still continues to have at least 3-4 seizures every hour and has extreme fatigue and nerve pain. Her doctors believe she had a virus in March, and along with stress to her body, it has turned on the “fight or fight” portion of her brain, sending constant incorrect signals to her nervous system.
Bailey’s current diagnosis is Functional Neurological Disorder with PNES seizures and is very rare, especially in children. Specialists and treatment for this condition are not easily locatable. However, Bailey will be traveling to the Functional Neurology Center in MN next week for a 5-day program that specializes in brain signals. This treatment is not covered by insurance. The Adcock family is also working to get Bailey into a longer-term specific care program in Kansas City. Unfortunately, there is a waiting list, and it is likely not fully covered by insurance.
Donations will help the Adcock Family pay for treatment not covered by insurance, travel expenses as well as insurance deductibles, co-pays and other out-of-pocket medical expense incurred since the beginning of Bailey’s treatment and hospitalization.
Please consider making a donation to help Bailey and share this GoFundMe.
We love you Bailey & the entire Adcock family!
Co-organizers (2)
Kay Stout
Organizer
Lincoln, NE
Kara Dejonge Adcock
Beneficiary
Nate Bahm
Co-organizer